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  1. Midnattsol

    2025-2026 Norwegian chronic fatigue guidelines - draft published

    There has been another patient-opinion piece with a reply from someone from HDIR at psykologisk.no Nina Steinkopf (patient advocate) "At Helsedirektoratet ikke svarer, knuser hjertet mitt" / "That the directory of health doesn't answer breaks my heart" Reply from Marius Sjølmæling (advisor at...
  2. Midnattsol

    SMPDL3B a novel biomarker and therapeutic target in myalgic encephalomyelitis, 2025, Moreau, Fluge, Mella et al

    Sphingomyelin concentrations in the blood (and cell membrane) can also be affected by diet, which could I guess also have downstream effects on the enzymes that can modify these lipids. *Other lipids from the diet is inserted into the cell membrane up to a point, I don't remember a...
  3. Midnattsol

    PEM discussion thread - post-exertional malaise

    To me we humans are also just reacting to our environment, be it physics or more abstract social stuff (I don’t believe much if any in free will, but in day-to-day that doesn’t really matter). I do believe «anything» can cause PEM, partly as that is my own experience and partly as that is how I...
  4. Midnattsol

    PEM discussion thread - post-exertional malaise

    I’m a cell biologist at heart, everything in our environment can cause the cell to have to exert itself to maintain functioning. For example I think my body is exerting itself trying to maintain an adequate blood pressure in the heat we’ve had where I live right now. Similarly I find it...
  5. Midnattsol

    PEM discussion thread - post-exertional malaise

    Anything that needs an organism/cell to adapt to it? Some cells react to sound, some to heat, some to touch etc. It all has to be processed in some way.
  6. Midnattsol

    NICE Clinical Knowledge Summary (CKS) on ME/CFS, July 2025

    And even patient organisations can be turned down by the ethics boards for not being an affected party. As if the studies occur in isolation with no plants to implement results to the greater patient communities.
  7. Midnattsol

    News from Scandinavia

    No, and I couldn't find a relevant case at https://www.skatteetaten.no/rettskilder/type/vedtak/ when searching for "brukshindring". It's frustrating we don't have a ruling on it.
  8. Midnattsol

    Oslo Chronic Fatigue Network

    I found the nurse education textbook by Vegard Wyller, and the short snippet on psychosomatic illness is firstly placed under the mental illness category (while OFN also says it’s neither somatic nor psychological), and goes straight for secondary gains like sickleave payments. That’s great for...
  9. Midnattsol

    Ways to improve evidence synthesis for systematic reviews - discussion thread

    Split from the Garner thread That would be my experience of how these things are taught at medical faculties (from someone who has had methodology courses with MD students).
  10. Midnattsol

    Exercise Intolerance and Response to Training in Patients With Postacute Sequelae of SARS-CoV2 Long COVID…, 2025, Cornwell et al.

    Off the sofa and healthy enough to shuffle along. I’m surprised he’s not jogging.
  11. Midnattsol

    News from Scandinavia

    When it comes so far as to be a disability payment question, I think most would have received an ICD code in their records as they would have visisted specialist services at some point. In contrast to for sick-leave payments where a GP can code A04 "fatigue" and that's enough for that particular...
  12. Midnattsol

    News from Scandinavia

    ME appears on the list of most cited diagnoses for young people on disability in Norway. Of those 18-29 on disability 3.9% are disabled due to Postviral fatigue syndrome/ME Numbers can be found here
  13. Midnattsol

    Post-COVID Syndrome in Pediatric Patients: Clinical Manifestations, Diagnosis, and Management Strategies, 2025, Fariza

    Another limitation of the current system would be lack of useful treatments, surely.
  14. Midnattsol

    [Retracted] Causal Relationship Between Diet, Lipids, Immune Cells, and [CFS]: A Two-Mediation Mendelian Randomization Study, 2025, Li et al

    The wording might be unique, but eating breakfast or not has been a hot topic in nutrition. Which is also the case with cheese consumption, as saturated fat increase LDL cholesterol and cause cardiovascular events are standard guidance. However studies on dairy can be all over the place (dairy...
  15. Midnattsol

    Protocol Take charge after long COVID: a mixed methods randomised controlled pilot study protocol, 2025, Laver et al

    I've needed a new approval for minor changes in the project description with no real difference for the "ethics" of the study in question. Such as changing the cut-of date for data collection (the reasons for why the change is done might be relevant, but for us it was just "we've waited so long...
  16. Midnattsol

    Careers (and job) advice for people with ME/CFS (maybe particularly young people) - a discussion

    I'm starting a new job at a medical data registry. Hopefully it works out.
  17. Midnattsol

    ME/CFS and Long Covid - Digging Deeper 7-8 May 2025 | Stavanger | Norway

    His lecture for students at the medical faculty at the university of Bergen was good too :) Glad at least some health care providers get decent information.
  18. Midnattsol

    News from Scandinavia

    Indeed. A helpful member of the public made them aware of the error ;)
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