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I hope they're reading here or can be directed here. It's crucial to get this right & so many advocates (inc myself) have said things in the past that have been counterproductive. yes

That’s awesome thanks @Utsikt - exactly what I was trying & failing to achieve. Incidentally the world and his wife now experience “terrible PEM” because they feel tired after doing … whatever… The term is nearly meaningless now. Just like every cold is the flu, every headache is a...

Just tagging you @Jesse as I know you asked about this kind of phenomena & whether others experience it. Just came across this oats from a while ago thought it might be of interest :) Edited to add: sorry I quoted myself - I was replying to @Yann04 in post #25 I can’t work out how to add link...

God, why do I read these things, why oh why when I am warned of dragons, do I wander out to get my heart burned again. I mean the rest of it... ok, he's simply wrong. Its the character assassination that hurts. No doubt that is just my 'obsessive need for sympathy'. I wonder where this sympathy...

Ah ok thanks

I',m a bit bewildered by all this... arent these tests done as standard blood work for each of us before diagnosis? FBC, LFT & glucose must be, surely?

If possible could you share more about this please - which one/brand etc? i ask becuase i been looking for one for a while, just as a thing to pul up over myself on a cool morning, but i not been able to find a good one. They all seem very rough to the touch - i have to have really smooth soft...

yes its interesting, it's make me wonder too.... i use a silk duvet (I think a 4 tog) even in winter, as i get terrible night sweats since the ME started, but its too hot for summer. I have a M&S 'cool comfort' cover for it because it's one of those 'wicks away moisture' fabrics, and it's as...

yes i do that if i can, a cotton one, as i too like weight, but on hotter nights i use a flat cotton sheet, and if it really hot I use a muslin cot sheet, small enogh to carry to the bathroom with me & wet it down then carry it wet to the bed to cool me.

I think they would say that the following applies to us, in fact I think they do say it. Where they feel they are the experts & we the bloggers. I think this is one of the reasons why we have such a lot of problems getting people to listen to us - because its easier to believe that we are...

Jesse we do have a few threads - at least 2 IIRC - on the 'adrenaline effect' a term people seem to use to represent different things, but you might find them interesting. If you do a search for threads with adrenaline in the title im sure you'll find them - just to give you a flavour of...

Thanks @Utsikt @Binkie4 I dont keep up with There for me, wouldnt have known where to find it.

so so true. Do you have a link pls Binkie? No worries if not but I'd like to share that widely

Yes this often happens to me when emotionally stressed at the outset - ie angry or scared. I won’t say I never hit the wall but it certainly takes a lot longer.

Ah, thats interesting thanks, wont say more as off topic

lol @Jesse 's only been here 5 mins & he's started describing my own experience much better than I ever could! :giggle: They did it higher up on this thread too asking about stress hormones. Cheers Jesse

Wow... so would that be the phenomenon that happened to me with my excrutiatingly painful "frozen shoulder"? To move my arm in particular ways higher than a certain point was incredibly painful for a few months, then one day it just stopped hurting and i bacame literally unable to lift my arm up...

Yes, exactly this. (edited to remove the bit in Jesse's quote about cycling/working for 4 hrs as have never been able to do that much, but the bit about the certain amount of activity stands - the amount of activity that provoked hitting the wall has just got less as severity worsened as is usual)

and in the darkness bind them

ok thanks @MrMagoo