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Yes.

It's always the same for me - lower energy and weakness. When bad, add to the mix a feeling of being really sick (as in unwell, food poisoning or norovirus or bad flu weakness). That's how it is for me.

Pre ME - I had severe food poisoning whist on holiday abroad. I was so weak I had to lie on the floor at the front of the aircraft on flight home. I didn’t have strength to sit upright. I had to have a wheelchair from aircraft to airport & around airport to taxi. I was bedbound for a while...

Just a point of interest as to how mood can be affected etc: A good friend recently had a bereavement, she is normally one of the happiest and bouncy (Tigger-type) people that I know but this bereavement shook her and changed her - in a bad way. She had intense sessions with mental health team...

It's difficult to explain. Especially with a fogged up mind .. but I'll try: I don't get what I understand of as clinical depression, I tend to experience a fluctuation of mood. My mood (brain chemistry) is definitely affected by my fluctuating hormones and I can normally tell that kind of...

This. How is it not obvious? Who are these people? It’s not rocket science is it. :mad:

I’ve not read the article, what stands out to me is: We (ME patients on forum(s)) are aware of PEM being a hallmark and telltale factor of this illness and the BPS guys have often chosen to ignore it. What a great tool they have here to play with - in essence they could now embrace PEM as a...

Hi everyone, I have good news. I finally (and fortunately, as my scan results were going to be left to be reported on for another week till I mentioned the fiasco I've endured and the NICE guidelines stating that my scan should have been urgent and within 2 weeks and I'd had to wait 5 weeks)...

Exactly this.

There’s nothing really that takes my pain away, but the thing that helps me most is heat. Like a hot water bottle or a warm bath (if it’s manageable). Gabapentn didn’t suit me and effects were not long lasting. Acupuncture wasn’t something I could tolerate, I was too sensitive in the areas...

I’m due to have a 24hr blood pressure monitor done (for hypotension episodes) well I’m rearranging as I’m not up to all the energy sapping appointments at this time - but, yeah my cardiologist has referred me to see if anything gets recorded, if needed she’ll prescribe something to help?? Not...

This really needs to change and the public be made more aware of the spectrum of complexity that makes up disability.

This. And, I (when I have PEM or relapsed or having brain fog for whatever random reason) forget all the symptoms (of which there are many that flare up). I long for a day when (just like established diagnosis' that the public pretty much have an idea about, or if they don't they believe it)...

That is my experience - and especially after I had pneumonia.

@Gary Burgess I am SO sorry to hear this news. Thinking of you and wishing you all the very best with your treatment xx

I’ve done it. :)

Typical :banghead:

How offensive, back to patient blaming - again. I have really wanted to be cured, still really really want to be cured .. I’ve given my all to try and be well. :mad:

Hmm, just when you thought you’d seen it all .. this is a joke, right?

Social media involving asking ie: ME Association, Carol Monaghan, @Tom Kindlon to help out. I know one person directly who has ME but avoids forums and patient community because of how long she's had ME and how many times she got her hopes up, or to avoid the nasty BPS narrative that is very...