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My writing was/is affected, also my ability to do artwork as I can’t hold pens/pencils etc comfortably and dexterity is shocking. My writing is very hit and miss now, mostly miss. I can sometimes write half a sentence in half decent style, any attempt after that isn’t at all legible.

Thanks @dave30th I just hope there’s light at the end of the tunnel - soon. The current NICE appointment situation has knocked me for six! Someone will just not let go - it sucks. xx

:wtf: WOW! Can’t quite believe I’m actually reading this news! Made my day.

Same here, almost exactly. I could (years ago, before illness progressed) do gentle yoga but after so long I relapsed and never recovered to where I was prior to relapsing.

I agree, this is likely what happened here: A newly diagnosed girlfriend (of a friend of the family) was excited to go and get treatment (paid for by her parents, who were thrilled at the prospect of getting their daughter better). It sounds like she had LP. Her rapid decline (and need to now...

A newly diagnosed girlfriend (of a friend of the family) was excited to go and get treatment (paid for by her parents, who were thrilled at the prospect of getting their daughter better). It sounds like she had LP. Her rapid decline (and need to now use a wheelchair) has shocked family members...

Loved the interview with Emma. Good to hear her own experience too and how she’s doing now. Well done @Gary Burgess

Really interesting interview with @Trish Was lovely to hear Trish speak. Great show.

I have rapeseed fields not too far away and fields and wooded areas nearby, the rapeseed is pretty bad. We also have a large composting facility around half a mile across the field from us. I rarely get to be in a supermarket now, these last few years I've been largely housebound, after...

I can experience that in some garden centres, but not all. It seems to be the indoor lily type plants that'll cause the reactions.

That's great that she is much better now. Ah, so it may be worth getting allergy tested? That's something to think about. From there (depending on what the results were) could look at the triggers. Thanks.

When I very first became unwell I was still working as a nurse at a hospital, I had my oxygen saturation checked after I'd walked around and experienced the shortness of breath, my saturation levels were within normal range, around 95%ish (bearing in mind I'd stopped walking by this point and my...

I'm really looking forward to this show :thumbup:

Thanks for that. Good to know. I have to be careful with certain treatments as I’m on heart medication. When I’ve had Fexofenadine (which I can take with my medication) it didn’t do anything to relieve these symptoms, in fact it caused worse symptoms (side effects). I don’t tend to do well...

Thanks, I appreciate that.

Yes, it does. I get dyspnea, yep. I do wonder if it’s oxygen related - the body (brain especially) not getting enough. It’s interesting at the very least. Maybe the reactions I get when at the roadside near trees is somehow oxygen related too? Wouldn’t it be good if we were actually sent...

For as long as I have lived at my home, around fourteen years or so, I have suffered terribly in the summer months with hayfever. This goes beyond sneezes and itchy eyes. But, I also have other reactions in summer months. I can be OK near trees if they’re away from a road. If there’s a road at...

This is outstanding advocacy, it felt real, you could witness the effects of brain fog later on..this is important for people to see. Chris was excellent! Janet too.

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