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This paragraph is priceless: "Dr Crawford states that we have been led by a confirmation bias in stating that fibromyalgia can be defined as a functional disorder and, therefore, examined the role of HPA-axis dysfunction in fibromyalgia as a possible cause for the disorder. Whilst it is true...

How can the severe or very severe not pace? Beset by so many horrid symptoms, the body naturally slows down, lies down, sits down, and does not push--it can't with this torrent of symptoms, and then OI on top of it. My daughter used to call it the Immobilisation Treatment--after any...

Yes, the article is very good. However, the section on pacing is tricky: they write: "Once patients are effectively pacing without triggering PEM, some patients may be able to engage in very short periods of activity to increase their stamina. This must be individualized for the patient’s...

https://www.healthrising.org/blog/2021/08/24/nath-long-covid-problem-crisis/. I am not sure if this material has appeared anywhere on this site. Cort has prepared a summary of Dr. Nath's talk. The latter is a neuroscientist. He addresses long covid and ME. Nath talks of damage (permanent??)...

This is an utterly disgraceful piece. It implies folks need a shrink. This is an utterly disgraceful piece. Note that they are even suggesting that some folks who have Long Covid never had covid! It's all in their head because the pandemic was a stressful time. This is gaslighting. The same...

Thanks a million TigerLilea--your response is much appreciated. When you are able to, would it be too much to ask for the address of of this on line survey. I have never heard of it. Thanks again.

Thanks TigerLilea for the update. Would it be too invasive to inquire exactly what new symptoms you have 6 weeks post, or how far you have gone down, or any other anomaly. I am trying to compare with a family member. Thanks in advance.

Well, yes he makes lots of claims. His book is actually a great home remedy text— very useful. He says often he had ME and tried to help himself— I don’t think he has full health. And yes he still today says it’s the ‘ circuit breaker’ which goes in ME. I’d love a chance to ask where it is...

I’m pleased to hear that about the UK. In Canada there was nothing at all!

The problem is there weren't folks around who outlined how it could be managed; neither were there books. In the 1990s Dr Teitelbaum stated that the circuit breaker went, and his supplements would get it back on: ('from fatigued to fantastic' was the title of the book). He is actually a very...

That is the loveliest thing I’ve read all day!

Bravo Ariel, Excellent observations

That statement is sadistic, the one the doctor made. Unfortunately, on the long ME road I’ve run in to a good handful of malignant physicians.

And I feel invoking Nazi atrocities is not fair. WE are not in a war time situation. America is the richest country in the world, and there is plenty of cash to go to funding diseases; the problem is attitude, prejudice, ignorance. I prefer Whitney's pieces, actually.

It will encourage folks to do away with themselves. Imagine a 20 year old newly diagnosed reading her piece. I understand Peter what you write is accurate, but maybe long covid will bring results.

This piece, though well written, is so painfully discouraging, I am worried about the effect it may have on some severe people. I did not enjoy reading this at all; it was really searing.

Well, it is now 16 days post jab. I cannot say she is near baseline. The flu feeling is more acute. But she seems to have developed cognitive issues, which she did not suffer from severely. Eg. When someone texted her on the phone she could fire right back. She seems unable to do that. Some...

Forbin Perhaps I missed your posting. What was your second reaction like? My daughter sailed through Jab 1, however another circle of hell opened for her after jab 2. thank you in advance

I wrote to the secretary and was informed that this is not a drug trial, but they are trying to develop a diagnostic test in his lab. She did not offer us anything--such as participating, or anything. She said that there is no project for treatment development yet, and not before 2022. She...

Personal update: my daughter received her Pfizer 2nd dose yesterday: Thursday. She tolerated the first dose spectacularly well. No real issue, just a slight sore arm from the puncture. There was an 8 week interval between the jabs. However, 5 hours after the 2nd dose the most awful symptoms...