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  1. ToneAl

    People with invisible disabilities like me are routinely disbelieved — and it can have long-lasting effects (mentions ME)

    Redfox how did you react to your autism diagnosis To me it was a relief but also angry because it should have been diagnosed earli
  2. ToneAl

    Functional Neurological Disorder (FND) - articles, social media and discussion

    It's like a advert and promotion for fnd but underneath it lacks any sense and scientific basis
  3. ToneAl

    People with invisible disabilities like me are routinely disbelieved — and it can have long-lasting effects (mentions ME)

    I wonder how much bias there is in diagnosis and how much misdiagnosis because of it.
  4. ToneAl

    People with invisible disabilities like me are routinely disbelieved — and it can have long-lasting effects (mentions ME)

    I agree Sean, I have a invisible disability of autism. I have had big troubles with doctors through the years. Especially one time a neurologist tried to diagnose me with conversion disorder based on my father inlaw passed away. He was so ignorant and wrong and didn't know nothing about autism
  5. ToneAl

    Functional Neurological Disorder (FND) - articles, social media and discussion

    The article seems weird 1 why quote something from 100 years ago when science was way behind what it is today. 2 Hysteria seems to be an ignorance of what may come ahead. Many diseases where once considered hysteria have now have a biological basis. 3 fnd/conversion disorder is still ignorance...
  6. ToneAl

    Functional Neurological Disorder (FND) - articles, social media and discussion

    I come across this article Goes through the history of FND but basically I think it's a advert really with lots of unproven theories
  7. ToneAl

    Cognitive behavioural therapy for adults with dissociative seizures (CODES): a ... multicentre, randomised controlled trial (2020) Goldstein, Chalder

    Looking at all the authors it's the who who of fnd. Since the trial was completely crap and invalid. Does that imply that the complete ideal of fnd and associated treatments are crap and invalid especially from Dr Stone and gang
  8. ToneAl

    Objective Proof of the Nocebo Effect?

    Reminds me of Watchmen the movie with Rorschach and his continuous changing Rorschach mask
  9. ToneAl

    Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

    Isn't MS one of the hardest diseases to diagnose in the early stages when mri doesn't pick up any lesions or if you are unlucky lesions that won't be picked up by mri. So fnd is useless if it diagnosis these patients I was reading once on a MS association website in Britain a Man in his 50s had...
  10. ToneAl

    Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

    Or it could be the bias of the doctor always thinking of it being psychological
  11. ToneAl

    Communication interventions for medically unexplained symptom conditions in general practice: A systematic review 2022 Byrne et al

    The whole MUS ideology is that of cost and time. Fewer tests and ĺimited appointments. The whole cut of points regarding pathology tests could also be examined
  12. ToneAl

    Objective Proof of the Nocebo Effect?

    fMRI seems to be the fnd researchers main instrument where they can interpret the results any way they like
  13. ToneAl

    Famous people diagnosed with neurological diseases

    Merged thread Christina Applegate Recently on the news Christina Applegate from Mariied with Children and other movies has been recently been diagnosed with MS
  14. ToneAl

    Functional neurological disorder and placebo and nocebo effects: shared mechanisms, 2022, Fiorio, Edwards et al

    You forgot to add metabolic and genetic processes can cause neurological problems. Mitochondrial disease is one and the other is lysosomal storage disease such as adrenoleukodystrophy and muscular dystrophy can cause neurological problems
  15. ToneAl

    Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

    I was trying ro get my foggy brain over your statement So it may take longer for a proper diagnosis if a fnd label is given without proper care and further symptoms develop. Reminds of an actress Selma blair who had to wait 15 years for a proper MS diagnosis. She was having symptoms for years...
  16. ToneAl

    Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

    Maybe by claiming various poorly understood diseases of neurology into the fnd canp he could ultimately blow up tje entire fnd camp especially if some of these diseases get misdiagnosed and the fnd label doesn't help. Functional overlay is another dubious idea it basically any symptom other than...
  17. ToneAl

    Cognitive behavioural therapy for adults with dissociative seizures (CODES): a ... multicentre, randomised controlled trial (2020) Goldstein, Chalder

    I had a quick listen so the patientbwas having very different seizures from the normal and may have never picked up by eeg. Does that mean if certain tests aren't done due to doctor bias or not having knowledge about certain types of uncommon or rare disease that have uncommon symptoms. We can...
  18. ToneAl

    Functional neurological symptoms as initial presentation of Creutzfeldt-Jakob disease: case series 2022 Gómez-Mayordomo et al

    There was another case like this reported by Solvasen check woolies library on criticism on conversion disorder. Looks like fnd is useless and neurologists never learn
  19. ToneAl

    Cognitive behavioural therapy for adults with dissociative seizures (CODES): a ... multicentre, randomised controlled trial (2020) Goldstein, Chalder

    Who is this author it's sounds more of marketing Informercial piece than a proper scientific explanation
  20. ToneAl

    Evidence on diagnostic rule-in signs for functional neurological disorders (FND)

    I remember Dave's post. From the 2013 paper there is little evidence that the signs can identify people with fnd. Most of the signs have self fulfilling prophecies.
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