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Yet more proof that although FM may be a common co-morbid condition in ME patients, they are not the same illness. During the first year after my ME diagnosis, it was suggested Tai Chi would be a good low-intensity exercise for me (previously an extreme athlete). I signed up for a beginners'...

Medicine Has A Sexism Problem, And It’s Making Sick Women Sicker https://www.huffingtonpost.com/entry/opinion-dusenbery-medical-sexism-research_us_5a9e01c4e4b0a0ba4ad72a3c?v7 This article published on HuffPost today provides an excellent overview of the MUS concept as applied to illnesses that...

Hi @Louie41 , it's unlikely you saw this article in Canada's leading news magazine. But perhaps it would be of interest. Condo hell Thanks to neighbour disputes, crazy restrictions and incompetent boards, condo dwellers are increasingly finding themselves boxed in...

Hi @Dechi , I can imagine how difficult the prospect of moving is for you. As a person who has moved, renovated, and considered moving a second time during my 30 years with ME, I may be able to offer comments and suggestions to help you make your decision. Based on the above, may I assume you...

I need 10 hours to function reasonably well at a low to moderate level. I’m rarely up for more than 6 - 7 consecutive hours, and deteriorate without an afternoon nap (sometimes as long as 3 hours). The more I do, the more sleep I need — up to 16 hours in a 24-hour period.

@Dechi , based on the concerns you have expressed regarding exposure to chemicals, have you considered the potential impact of spending half of the year living in the toxic environment of a brand new home with windows closed? Modern building products are full of unhealthy chemicals. My M.E...

A little "off-topic", but I'm just back from the latest installment of my campaign to educate members of the Canadian medical system -- one person at a time. Today's appointment involved a charming and enthusiastic young man who is enrolled at our local med school. He was "shadowing" my...

Generally a very good article, except for this statement from New Zealand Doctor Rosamund Vallings: "Swimming, walking, yoga, tai chi and cycling are all suitable activities which can be monitored and increased very slowly." The above has most definitely not been my experience. Believe me...

@Perrier I suspect Montreal is not unique within Canada with respect to ME not being covered in medical schools. Due to several medical issues in addition to ME that have developed during the past eight years, I have seen many specialists. Further, my excellent GP and rheumatologist...

Based on what’s causing me significant PEM these days, may I suggest knitting?

Not only is the donation worth celebrating. News coverage, such as that at the link below, should also help the cause. From Reuters, a high-profile source...

Here's an article published on-line today that may be of interest to those with ME who also experience multiple chemical sensitivities: http://www.marieclaire.com/health-fitness/a15947380/living-with-mcs-multiple-chemical-sensitivities/ My House Made Me So Sick I Had to Move What it's like to...

Although not new, this publication from 2005 is new to me. The complete title is: "Assessment and Treatment of Patients with ME/CFS: Clinical Guidelines for Psychiatrists" Nothing to fear here . . . it was written by a Canadian psychiatrist (Eleanor Stein) who has both personal and clinical...

In Canada, news articles that include even a crumb of information about ME are few and far between. So, I was encouraged to find the following: http://lastwordonhockey.com/2018/01/22/montreal-canadiens-carey-price-dealt-with-chronic-fatigue/ Yes, it's a stretch . . . the story talks about how...

@Andy , @Amw66 , @Barry , @Binkie4 , @Invisible Woman , @Inara , @MErmaid , @MeSci , @Mij , @ScottTriGuy , @Trish I'm responding here (rather than on my original thread -- hence, the "tags" above) because this is where the bulk of the EDS discussion has taken place. I'm just back from an...

This thread is extremely timely for me, since I received virtually no response to this thread: https://www.s4me.info/threads/referral-to-inherited-metabolic-disorders-clinic.1941/#post-34006 At the time, I wondered if @Jonathan Edwards "expert" views essentially shut down the thread before it...

Here's a link to another article that discusses the recent change in how those with chronic illnesses and disabilities are depicted in both news articles and pop culture: https://www.bitchmedia.org/article/chronic-illness-onscreen SICK WOMEN HOW WOMEN TOOK CONTROL OF CHRONIC ILLNESS NARRATIVES...

Thanks, @Binkie4 , for reminding me of Doctor Meglathery's work. Like you, I don't feel qualified to assess how much merit there is in her theory, but it is intriguing. I also have mitral valve problems, although in my case not serious enough to require surgery. If I learn anything useful...

Before Christmas, I was surprised to receive a letter from our healthcare service advising that I have been referred to the above genetic clinic. I hadn't seen the referring internal medicine specialist for 1 1/2 years -- the length of the wait list period, I now know. I questioned the patient...

For me, this issue is a matter of semantics -- how one defines the meaning of a word. I have referred to myself as either ill, or disabled, depending on the situation. Based on recent articles I've been reading, it seems "disability awareness" may be one of the top news stories of 2018...