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  1. W

    'Three best' questions to ask GP if they ignore you

    I didn't really know where to put this, but suspect this is as good a place as any! NHS doctor names 'three best' questions to ask GP if they ignore you...
  2. W

    Covid-19 vaccines and vaccinations

    TBH, I'm not sure this is much different from the current UK approach, except that I think the lower age limit is 75 here? My caree's GP, having read the stuff I sent her about ME, originally put her down as clinically vulnerable - but obviously she's not as high risk as someone who's...
  3. W

    Translating S4ME Fact Sheets into French

    Wish I'd realised this was going on a month ago! Is there some form of "international French" like there is "international English", or are texts going to need to be localised to large language groups, such as Canadian French, or Brazilian Portuguese, if we get that far?
  4. W

    Lightweight portable/folding seat/stool

    They're very lightweight, Arnie Pye. I tried one in the store. And I found them very easy to open, just pull and twist. If they start collapsing, that's another matter, though!
  5. W

    Lightweight portable/folding seat/stool

    My attention has been drawn to this and similar seats - e.g. for people who need to sit down often...
  6. W

    Factchecking website: fullfact.org

    I'm aware of them because they were heavily involved in fact-checking the claims made by both sides in the Brexit debate. I believe they were good. Are you thinking we should set them on Cochrane, by any chance?
  7. W

    Coping with heat

    Agree with this. We did it the last year we were in our over-hot flat, and it made such a difference.
  8. W

    UK: PIP appeals - advice, recommendations?

    My caree lost her appeal, precisely because she was unable to attend it in person. This was shortly before Covid hit: I would hope things have improved in that respect since.
  9. W

    Oxygen Therapy

    Thanks for the warning. That would explain the fire brigade car outside our house the other day: our next-door neighbours were hospitalised with what they said was a bad case of flu over New Year, and we've seen oxygen cylinders being delivered. I do hope they don't smoke :( (we haven't been...
  10. W

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    I think I was hoping I'd misread that and you wrote 98.5%. How much is 98.5 gig? Not that much, in the grand scheme of things?
  11. W

    Bird flu

    There are currently over 5000 people in hospital in England because of flu - including my neighbour :(
  12. W

    Well-known, famous people with ME/CFS (public thread)

    She's written a book in which she discusses it, I think.
  13. W

    Symptoms of Covid-19

    Symptoms of the new XEC strain: Covid XEC symptoms and how it is different to other variants (msn.com) Also, scroll down to the bottom for a link to another report which claims that its symptoms occur in a specific order.
  14. W

    Well-known, famous people with ME/CFS (public thread)

    Oh, that reminds me: Miranda Hart was on the Graham Norton Show on Friday and talked a bit about having ME. Miranda Hart thread here https://www.s4me.info/threads/miranda-hart-british-comedian.14390/page-4#post-559220
  15. W

    Miranda Hart - British comedian

    Oh, that reminds me: Miranda Hart was on the Graham Norton Show on Friday and talked a bit about having ME.
  16. W

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    WHEEEEEEE!!! (Sorry, I'm just so delighted at the very thought of you being in public places like shops and museums :D )
  17. W

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    Is this any good? Given my previous experience with the Maudsley, I'm reluctant to engage with anything they put out on ME.
  18. W

    Sound sensitivity

    I hadn't realised that people with MS suffer from this, too: https://www.standard.co.uk/homesandproperty/property-news/londons-noise-wars-noise-pollution-b1178594.html
  19. W

    How to be an Effective Advocate for a Disabled Patient (The Disabled Ginger blog)

    I believe this is called a ReSPECT form in the NHS? I didn't know it existed until today. ReSPECT - Recommended Summary Plan for Emergency Care and Treatment :: NHS Kent and Medway (icb.nhs.uk)
  20. W

    Methylene Blue

    I was thinking it was something you put in antifreeze ...
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