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  1. Tree

    News from The Netherlands

    From @guustweet at X Patiëntenorganisaties zijn ontevreden over C-support en Q-support. Ze hebben het vertrouwen in het bestuur opgezegd. #LongCovid #Qkoorts #QVS English translation Patient organizations are dissatisfied with C-support and Q-support. They have lost confidence in the board...
  2. Tree

    News from The Netherlands

    Onrust onder patiënten met Q-koorts en long covid: nazorg hapert en dreigt te verdwijnen https://fd.nl/samenleving/1554030/onrust-onder-patienten-met-q-koorts-en-long-covid-eindelijk-betere-nazorg-of-einde-ervan English Translation Unrest among patients with Q-fever and Long Covid; after care...
  3. Tree

    News from The Netherlands

    Two Dutch support groups have appointed Sophie Querido as new director. They are: - C-support (for covid aftercare) - Q-support (for Q-fever expertise) https://www.c-support.nu/sophie-querido-benoemd-tot-nieuwe-bestuurder-c-support/...
  4. Tree

    NL: UWV Dutch Employee Insurance Agency ao disability

    Hi, I translated the article, and now have added the translation of the attachment (the report) as well.
  5. Tree

    NL: UWV Dutch Employee Insurance Agency ao disability

    Part 2 The UWV doctors involved believe that cardiologists are not allowed to administer such a test and that the result says nothing about 'retaining and dividing attention' and 'remembering'. These are the cognitive functions that they look at in their assessment to determine possibilities...
  6. Tree

    NL: UWV Dutch Employee Insurance Agency ao disability

    Part 1 Also involvement of our wonderful Mark Vink Translation ME Steungroep (Support group) 28 MAY 2025: AN EXCITING DAY AT THE CENTRAL COUNCIL OF APPEAL By Ynske Jansen On May 28, I attended a hearing of the Central Appeals Tribunal. It dealt with the cases of four ME patients who...
  7. Tree

    Coping with heat

    It is horrible :sweat: but the graphic did give me a giggle. My brain feels on fire too. It sucks. I think we deserve a cool room with cooling nebulizers.
  8. Tree

    News from The Netherlands

    For people reading this thread, what formatting do you prefer on the Parliamentary questions? The first one; - a one page screen shot in silver gray (see the Bikker questions) - several pages, but bigger font (see the Bushoff questions)
  9. Tree

    UK House of Lords/ House of Commons - relevant people and questions

    I checked in dark mode and it is still difficult to see. Thanks for working on it.
  10. Tree

    Coping with heat

    If they have more mass, I would guess they would.
  11. Tree

    Coping with heat

    Yes, I meant these ones.
  12. Tree

    Coping with heat

    Are packs the flat ones? That you can put on your face/knees?
  13. Tree

    TNF blockade induces a dysregulated type I interferon response without autoimmunity in paradoxical psoriasis, 2018, Conrad et al.

    Is psoriasis confounding with a hygiene issue or do you mean skin issues in general?
  14. Tree

    TNF blockade induces a dysregulated type I interferon response without autoimmunity in paradoxical psoriasis, 2018, Conrad et al.

    I know one was very severe and tubefed but now seems to be in remission Here are some quotes of other people on the forum, do not know their severity If I remember correctly read on X and another forum of skin issues as well.
  15. Tree

    TNF blockade induces a dysregulated type I interferon response without autoimmunity in paradoxical psoriasis, 2018, Conrad et al.

    My skin issues started when I got sick. Not psoriasis as far as I know. But what it is has never been confirmed with certainty. I have heard from others who have skin issues.
  16. Tree

    UK House of Lords/ House of Commons - relevant people and questions

    Unfortunately this is not cynicism, it is how government communication works these days. I understand this is a suggestion from your side, so it is not sure if the plans will be announced on the same day.
  17. Tree

    UK House of Lords/ House of Commons - relevant people and questions

    Smart, because that would bury the ME plan
  18. Tree

    Coping with heat

    The cooling things that are in your freezer that you can put in a cooling box?
  19. Tree

    Coping with heat

    Would cooling elements be better?
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