From @guustweet at X
Patiëntenorganisaties zijn ontevreden over C-support en Q-support. Ze hebben het vertrouwen in het bestuur opgezegd. #LongCovid #Qkoorts #QVS
English translation
Patient organizations are dissatisfied with C-support and Q-support. They have lost confidence in the board...
Onrust onder patiënten met Q-koorts en long covid: nazorg hapert en dreigt te verdwijnen
https://fd.nl/samenleving/1554030/onrust-onder-patienten-met-q-koorts-en-long-covid-eindelijk-betere-nazorg-of-einde-ervan
English Translation
Unrest among patients with Q-fever and Long Covid; after care...
Two Dutch support groups have appointed Sophie Querido as new director.
They are:
- C-support (for covid aftercare)
- Q-support (for Q-fever expertise)
https://www.c-support.nu/sophie-querido-benoemd-tot-nieuwe-bestuurder-c-support/...
Part 2
The UWV doctors involved believe that cardiologists are not allowed to administer such a test and that the result says nothing about 'retaining and dividing attention' and 'remembering'. These are the cognitive functions that they look at in their assessment to determine possibilities...
Part 1
Also involvement of our wonderful Mark Vink
Translation ME Steungroep (Support group)
28 MAY 2025: AN EXCITING DAY AT THE CENTRAL COUNCIL OF APPEAL
By Ynske Jansen
On May 28, I attended a hearing of the Central Appeals Tribunal. It dealt with the cases of four ME patients who...
It is horrible :sweat: but the graphic did give me a giggle.
My brain feels on fire too. It sucks.
I think we deserve a cool room with cooling nebulizers.
For people reading this thread, what formatting do you prefer on the Parliamentary questions? The first one;
- a one page screen shot in silver gray (see the Bikker questions)
- several pages, but bigger font (see the Bushoff questions)
I know one was very severe and tubefed but now seems to be in remission
Here are some quotes of other people on the forum, do not know their severity
If I remember correctly read on X and another forum of skin issues as well.
My skin issues started when I got sick. Not psoriasis as far as I know. But what it is has never been confirmed with certainty.
I have heard from others who have skin issues.
Unfortunately this is not cynicism, it is how government communication works these days.
I understand this is a suggestion from your side, so it is not sure if the plans will be announced on the same day.
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.