Search results

This paragraph was interesting to me, as it tries to explain the role of Peroxynitrite nitrite in generating ME and the associated damage: all this a consequence of infection. Anxious to hear what others here think of this paper. Thanks. "The review is in favor of the hypothesis that ME/CFS...

Dr. Tompkins says that we have only come 10% of the way to understanding ME. This is very discouraging. How many years, how many generations will it take? How much suffering and how many early deaths will we have to go through? I truly believed that things had moved more than 10 percent. Maybe...

Just a friendly correction here from Dr. Janet Dafoe: Mrs. Tannenbaum does not makes these decisions. And the funding for this project came from elsewhere. I was unable to get more information because of an emergency interruption. Thanks.

With the greatest respect, we are talking about America here, and this is Stanford university and this researcher is top in the world. Is this a sign of the decline of America? I appreciate your observation Trish, I really do, and truly understand the implications, but this is not some rare...

Thanks for summaries. (Just a personal note: I wish that working time lines were also offered. These could be changed as things develop, but I do find the absence of working time lines very hard to take. I have been told that science doesn't work this way. But many years ago when I worked...

There is to be a new announcement/interview with Dr. Ron Davis today. I do not know what time. Someone please post. All I have is the you tube account: https://www.youtube.com/channel/UCFPlxCFpu1L9nI2oJjXhr3w Thank you.

Patient experience: my daughter had these IVs and around the 4 th one developed severe allergic reaction ( swelling of lips and tongue) and required IV Benadryl no noticeable benefit in terms of ME symptoms I’m so tired of treatments when we don’t seem yet to know what has gone wrong and...

Dear @SNT Gatchaman, This has been a most riveting thread, and I wish you would not leave, and I wish you would keep offering your views. These are new developments, and it is very important to discuss them, to look at them from all sides Dr Pretorius is a thorough researcher and she will...

Would you be able to give a link to this Facebook page please. When I type in MEAssociation about 10 organisations turn up. Also, please include the one for Aphaeresis. Thank you.

Then there are those who just wake up with PEM (and all the symptoms Trish underlines), day after day after, and they lie in bed like Egyptian mummies and the PEM still comes and they still wake with it (going to the WC, brushing teeth, I guess brings it on).

Yes, you are correct. But I am really stunned that PEM interfered only 30%. Watching our family member, I would say that PEM is the worst and primary symptom. She can walk, and do virtually anything, intellectual labour, but if she does, if she dares do this--this results in severe PEM or a...

@lunarainbows. Thank you dear lunarainbows, thank you. It is all so difficult, isn't it. And nowhere is the emotional/mental state taken into account, and that can cause a whole lot of PEM!

Yes, because it is the bottom line that counts, product and profit--time matters. In the ivory tower things bumble along slowly for the tenured, from conference to conference.

Thanks for posting Jaybee, but has anything leaked? I have not been able to find anything, except what Jaime posted.

Excellent, first rate, letter. However, Caledon is a rural town, prosperous, summer cottage country for the well to do. Maybe they will see the letter and wake up. A great pity a letter like this does not appear in the Toronto Star or the Montreal Gazette.

The issue for those who only find PEM disappearing whilst bedbound unfortunately brings other problems in the body. So from my observation my daughter needs to walk around a little in the house when she can, yes with PEM, in order not to aggravate other problems— back ache, neck pain, leg pain...

Your point is well taken--we rarely hear such strong recovery stories from folks who have endured this catastrophe for a decade or more. It is encouraging certainly, very encouraging. But some of the ill I know try so hard, so very hard, and what I hear, say from my daughter for example is...

I watched this video. And I worry that people who are very severe, and who do rest non stop for they can't do much, will feel like failures that they have not recovered. Mr Murray is a lovely fellow and I'd love to chat with him. If anyone knows how to reach him, please let me know. He does...

As my daughter required a pic line for blood transfusions, we kept it in for a very long time. Based on Bell's finding, she would do saline drips at home, and I can truthfully tell you that they did not change the quality of her life. Sometimes, for half an hour, she might move around a little...

Is this not a violation of the Hippocratic oath?