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@leokitten YOu write: "... the disease and symptoms have a constant, non-stop, every second of the day effect on your entire body so you intimately feel what is going on and develop a pretty good barometer - the way ME is currently interacting and negatively affecting my body with Abilify and...

https://www.washingtonpost.com/health/2021/05/18/immunocompromised-coronavirus-vaccines-response/ weak responses to the vaccination by those immune compromised. Pfizer and Moderna working to address this with a booster shot. I wonder what the results would be if ME patients were screened for...

As we in Quebec seem to have the longest break between vaccines, perhaps the second dose won't be so difficult. MY daughter was given a Pfizer yesterday, and the next shot is in September. I don't know of any other jurisdiction with a 4 month break between jabs. The information for reactions...

I think actually the two would be useful.

Is there even a single neurologist working in the ME research groups around the world?

Wyva, would you be able to share the name of this Facebook group? Thanks in advance.

I also just read dear Whitney's piece. I became weakened, devastated and crushed as I once again faced the reality of what living with this hell is like. My own daughter daily tells me that I do not understand what she is going through, and she is being accurate and making some kind of plea...

Preventing suicide will really happen when more effort is put into determining the problem and offering treatments which work. The conditions this illness imposes are truly cruel, next I guess to someone who is a paraplegic. The scientific community has shilly shallied with this devastating...

My 2 cents: I agree entirely with Andy. Let's just call it ME/CFS for now until the scientists can figure this out. Whitney wrote a long item in Facebook about this 'war.' I really just want help and treatment for a beloved beautiful family member. I despise the word 'fatigue' included in the...

Thanks I was able to read the subtitles. Does anyone recall what Jonas found in the spinal fluid? Thanks.

I tried to watch it and no subtitles appeared. Did omit to do something? Thanks

========================= How do you give a mouse Gulf War? And would you give a mouse ME? Or exertion intolerance?

My daughter's cognitive issues came on much later and more slowly. But she just told me five minutes ago that she could manage all the symptoms and somehow live, but she said there is one thing that makes it impossible to sustain this illness: exertion intolerance--which is then immediately...

I'm very interested in this cognitive issues problem. My daughter rarely had these for many years, it was PEM and sick feeling, poisoned feeling, but not cognitive issues. In fact, she tried initially to work from home. But the PEM and crashes eventually made it impossible, and then most of...

Thank you for adding this. Did she offer any time lines?

Dr Klimas says that ME patients stop working because of cognitive difficulties and not primarily the fatigue. I am really astonished by this statement. It was rolling severe disabling PEM that stopped my daughter from working, not cognitive issues. And then as she tried to push through all...

Yes, here this tiny titration method was also implemented, but the side effects were unmanageable. I recall reading on Cort's site when he addressed this issue, that a good number of people found they could not withstand this medication. I am very happy to hear that you at least have had some...

On our side, Mestinon, has not done anything, and shortly after taking it, side effects emerged which became intolerable, so the drug was stopped.

Milo, my daughter has had Bronchitis a few times, when she gets a cold. She can't seem to shake off colds, and then they slip down. These episodes have required medical intervention. So, I don't want to risk things. I am running around, and if I carry in the stuff, that will be very bad. But...

Do you have a paper from the govt for the disability tax credit. Just bring that. That is quite a rigorous questionnaire one goes through to obtain that. I will bring that. And I will clic whatever I have to.