A young woman films herself while lying on a wooden floor. It is dark, the image grainy. She tries to get up. Her breathing is heavy from the effort. It does not work. Later in the room there is a bed. She tries again, drags herself through the room and climbs on the blankets, panting. She falls...
Things are rapidly changing it seems. One after another stops recommending exercise or is reviewing guidelines. A pity that in the Netherlands we're faced with the most stubborn of bastards.
They try even harder and get even sicker. Atleast that's what happened in my case. When finally discovering this sort of treatment is a load of bollocks and I shouldn't be blaming myself for not getting better it was as if a huge weight was lifted from my shoulders.
Doubt it matters much to the general public. Pace-controversy+biological findings is double win imo. When it comes to convincing professionals we have to come up with more facts, but those are available in abundance.
By my knowledge it's being trialled for a number of diseases like ulcerative colitis, crohn's disease, RA but M.E. aswell. Can't however find the stuff about M.E. again. It's a Jak-1 inhibitor whatever that means.
Then you're a better man than me. Someone that inflicts so much harm to a very vulnerable patient-group(me-patients), and out of those the most vulnerable off all, namely children, I have nothing but contempt for her. And I honestly can't wait to see herself dig an ever deeper hole.
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