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Only one point: Science Media Centre is listed under Science Media. I know there is Science in their name, but they promote mostly quackery, so should they not be mentioned under regular media?

@Maat nice to see you here again, was wondering how you were doing!

This is not like’ worthy, but deserves commiserations :(

I have ran a translation through Apple and made a few small improvements. Can I send it to you?

https://www.nieuwsblad.be/buitenland/wetenschappelijke-studie-toont-link-tussen-genen-en-chronisch-vermoeidheidssyndroom/82466639.html From Belgium Added; Not seen any Dutch coverage Wonder if it would be an idea to translate the press release in Dutch and spread it to Dutch and Belgian media.

I would like to compliment @Chris Ponting and team not only for DecodeME and the results but also for the great media strategy. - the coverage - the talking points - the interviews - the communication with patients Thank you!

Is there a way we could help the media effort of Decode Me? If the results are very promising, could we help by tweeting results with #decodeme for instance?

Thank you! I get the white screen again (with s4me.info in the header). It’s okay, the letter is in the link too, right?

If I click on the attachment, I get a white screen.

Shared talking points from all - recovery is possible (reality: rare) - very complex - need individual approach Shared talking points for most - holistic / collaborative care needed

I liked your idea for specialists to do home visits (on another thread some time ago). Ideal for ME patients

Sorry that happened to you. It is damaging if you turn to people who are supposed to help you, and they treat you like this.

Apologies if this is already happening. But is it an idea to start spreading the excellent S4me newsletter to GP’s and specialists?

I would start a mass media campaign to bring the message that yes this can be a deadly disease. We need the public at large on our side. That will drive societal change. I would also start a press agency to start targeting all news media and start a lobbying group to influence politicians.

I would start with the very severe who are at risk in hospitals and need care the most. This would also get the message across that this is a very debilitating disease and is not just being a bit fatigued.

Does BACME have any links with SMC or BPS?

That is so strange to me. He cared enough to get the process rolling for better care. Without funding any plan would be useless. As a financial man he would know that.

I would be very interested in knowing what input was given by BPS crowd and what led to the endless delays? #FOI

These were the FOI’s I found on the Delivery Plan in March, All three were answered by the Committee on Standards in Public Life https://www.gov.uk/search/transparency-and-freedom-of-information-releases?keywords=delivery+plan&content_store_document_type%5B%5D=foi_release&order=relevance But...

Are they really good or is this really good marketing of the makers of these medications?