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*** Free public lecture: University of Tasmania, College of Health and Medicine *** “Chronic Fatigue Syndrome (aka ME) – Challenging the accepted dogma through research journalism” Speaker: US journalist and academic, David Tuller Date: Wednesday 4 April, 2018 (note the link below has Tues...

Congratulations to all the authors for this excellent analysis, and for getting it published. Today’s release of the SMC’s “alternative facts” sheet suggests they are on the back foot and getting desperate. Well done!

I completely agree. PACE may be the GET/CBT’s jewel in the crown, but there is still a large body of similarly (though perhaps not as egregiously) flawed work left standing once PACE has gone. That’s why I wrote this PEM/GET primer, focussing on the flaws in the GET research as a whole, not just...

No, it’s an “alternative facts” sheet, the likes of which would give Kellyanne Conway a run for her money.

Did you hear him come on, Esther? I’ll post the recording when it goes up. I missed it too! :( Someone said David was on fire, so should be worth a listen!

David Tuller will be interviewed on ABC Radio Canberra today at 10.10am (AEDT), which is in just under 30 minutes from now. This is the live link for anyone who sees the post in time. http://www.abc.net.au/radio/canberra/live/ I will endeavour to the a link to the recording for anyone who...

David will be interviewed on ABC Radio Canberra at 10.10am (AEDT) (in about half an hour). You can listen live via this link: http://www.abc.net.au/radio/canberra/live/

It works for me. I’m not sure what the problem is. What about from here?

Here is the video of the Q&A which followed the screening of Unrest in Melbourne on Sunday March 18. The panel members were: Patient advocate: Anna Kerr Melbourne Bioanalytics researchers: Chris Armstrong and Neil McGregor Academic & journalist: David Tuller PhD student: Fane Mensah Thanks to...

Sorry, typo. It’s Sunday March 25. I’ve edited the post. Thanks for picking that up!

Details of Sydney public event: Sunday March 25: 1pm-3pm Thai Pothong Restaurant function room 294 King St Newtown http://www.thaipothong.com.au/newtown This is a free event (plus optional lunch, with gluten and dairy free options). The venue is wheelchair accessible, and close to public...

Organisers have had very short notice to pull events together, as details of David’s trip were only confirmed very late. We are doing the best we can. We are all sick (or carers), and trying to organise a 6 week trip, with so little notice, has been a huge challenge for everyone. I understand...

Details of public events in Queensland. There are two confirmed events, and a possible third. **************************** Friday April 20, 2pm-4pm. This event is hosted by ME/CFS Australia Ltd. Speakers: Dr David Tuller (journalist and academic) Dr John L Whiting (Infectious Disease...

We use the prevalence estimate from the ICC Primer, which is 0.4-1.0%. 1% of the Australian population (24 million) is around 240,000. At the end of the day, we are all just giving a best guess. Until we get decent epidemiological data, that’s all we can do.

Merged thread On Tuesday, there was a program about ME/CFS on the program “Uncommon Sense” on Melbourne’s RRR radio. This program featured an interview with Jen Brea, followed by a panel discussion featuring patient advocate Anna Kerr, Melbourne Bioanalytics Researcher Chris Armstrong and...

For some reason, I can’t get the live link to post here, but you can find it easily on Emerge’s Facebook page: https://www.facebook.com/EmergeAustraliaInc/

Sorry for not updating this thread, everyone! Details are still being finalised for David’s trip. As @AndyPandy said, Emerge will be live streaming their Q&A event on Facebook, which will take place on Friday March 16, at 2.30pm Melbourne time. They are open to people sending them questions...

Dates and locations for David Tuller’s Australia tour (subject to change): Edit: the dates below have been amended. These are the current dates. Melbourne: Mar 16-20 Canberra: Mar 21-23 Sydney: Mar 24-Apr 1 Hobart: Apr 2-4 Adelaide: Apr 5-11 Perth: Apr 12-17 Brisbane/Gold Coast: Apr 18-22...

David Tuller will be touring Australia as part of his 12 month crowdfunded work for ME/CFS in mid-March. Event details are yet to be finalised, but he will be in Australia for 4-6 weeks. I will post updates of events to this thread as they are available.

Here’s my email: “Dear Carol, I am writing in regards to the upcoming parliamentary debate about the PACE trial. I am writing from Australia to provide an international perspective of the impact of the trial on the lives of people with ME/CFS. As in the UK, GET is commonly recommended for...