Search results

  1. C

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    Widen the Lens: The Dark Endgame of the NIH Cuts “The Universities are The Enemy" David Pepper Feb 12, 2025 https://davidpepper.substack.com/p/widen-the-lens-the-dark-endgame-of?r=17y7a&triedRedirect=true I know from my time in office here that one of every 12 jobs in the Cincinnati region is...
  2. C

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    A twitter thread - more general than the Research issue but it illustrates the direction of travel The View of a Tech Insider A you’ll want to read Amid all this talk of DOGE and tech and data and access, I thought I’d check in with another friend of mine who does this work for a living to...
  3. C

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    Chaos is a by product, useful but not the main objective. There seems a pretty clear intended outcome: with reduced costs directly claimable on the grant fund, University administrations would reduce all 'included services' to researchers beyond the very basics of administering the grant -...
  4. C

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    Buckle up: https://bsky.app/profile/darbysaxbe.bsky.social/post/3lhcvn4hxwk2o BREAKING. From a program officer at the National Science Foundation, a list of keywords that can cause a grant to be pulled. I will be sharing screenshots of these keywords along with a decision tree. Please share...
  5. C

    UK: Pathways to Work Commission Report July 2024

    Text = Here we are demonstrating against the NHS in job centres back in 2015. We succeeded then thanks to DPAC, Mental Health Resistance Network and Recovery in the Bin. We must now. Work is not a health outcome. Mental health provision must be independent to the hugely feared DWP. Text =...
  6. C

    UK: Pathways to Work Commission Report July 2024

    This is the new Government's primary policy statement on Employment and it includes a lot on illhealth and disiability and return to work from illness. It needs to be read carefully and while the report launch saw some lurid headlines in certain news outlets, e.g...
  7. C

    UK: Pathways to Work Commission Report July 2024

    Kendall launches blueprint for fundamental reform to change the DWP from a ‘Department of Welfare to a Department for Work’ Work and Pensions Secretary Liz Kendall will use landmark first speech to set out the Government’s plans to reverse dire labour market inheritance and drive up Britain’s...
  8. C

    Thousands of foreign nurses a year leave UK to work abroad, Campbell, 2024

    There now exists a sophisticated global market in health care employment which the UK arguably started this in the 1950s and now ironically suffers the effects of as it struggles to outbid other more attractive employing countries. At the heart of the problem is massive undersupply of skilled...
  9. C

    Thousands of foreign nurses a year leave UK to work abroad, Campbell, 2024

    The Guardian Thousands of foreign nurses a year leave UK to work abroad Denis Campbell "Almost 9,000 foreign nurses a year are leaving the UK to work abroad, amid a sudden surge in nurses quitting the already understaffed NHS for better-paid jobs elsewhere. The rise in nurses originally from...
  10. C

    "Failings in the care of patients with Very Severe ME" by Dr Nigel Speight, 2024

    I suspect that a lot of people at all levels have a sense of hanging in there in the hope that something will change - and then if those people do give up the decision making posts go to the ones who actually don't care that things are increasingly unsafe. I think there was a lot of hope that...
  11. C

    "Failings in the care of patients with Very Severe ME" by Dr Nigel Speight, 2024

    It's not in the power of the Trust medical director to 'commission' a service - commissioning i.e allocating funds - is done by the local ICB, in this case One Devon. The ICB distributes funds around the differing NHS Trusts in its area - there are three Trusts in the the One Devon area, of...
  12. C

    MECFS data analysis thread

    If ME/CFS is a single pathological entity then maybe what you suggest could identify things that have been missed - but to me that intitial 'IF' is a problem. IMO it is likely that what we recognise as ME/CFS in any individual is the outcome of more than one pathological process (both cascade...
  13. C

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    I think it's safe to assume that the individual is well aware of the "contested nature" of the psychological designation of ME/CFS; making yourself a 'poster person' on multiple grifter health sites could I suppose be a sign of excessive credence, but a Psyc grad doing an MSc surely can't be...
  14. C

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    About Edit post - https://help.twitter.com/en/using-x/edit-tweet
  15. C

    Depressive inclinations mediate the association between personality (neuroticism/conscientiousness) and TikTok Use Disorder tendencies, 2024

    That TTDU-Q - Google translation from German: The questions below relate to your TikTok activity over the past year (more precisely, based on the last twelve months). Please indicate how frequently following problems on average over the last twelve months up to today days occurred. 1. I've had...
  16. C

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    Open NHS documents https://www.oxfordhealth.nhs.uk/news/election-to-council-of-governors-results-2022/ Public Oxfordshire Mike Hobbs Natalie Davis Srikesavan Sabapathy Fiona Symington https://www.oxfordhealth.nhs.uk/about-us/...
  17. C

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    Symington describes herself as a "Psychology Assistant Research Worker" https://uk.linkedin.com/in/fiona-symington-42a8b4135 and appears in at least 3 grift videos: Healing from Chronic Fatigue/ ME and other symptoms w/ Fiona Symington & Living Proof - Stories of Hope - Recovery from ME Chronic...
  18. C

    Preprint Did “long COVID” increase road deaths in the U.S.?, 2023, Robertson

    Just to add a comparison - which might suggest there's a far bigger problem than driving while LC. US has close to exactly 5 times the UK population. US road deaths 2022 = 46,270, UK = 1,695 US road death per annum have been above 30k since 1946 increasing up to 50k in the 1970s but hit sub 34k...
  19. C

    Has there ever been any evidence that health professionals are more represented among ME patients?

    Incidence of myalgic encephalomyelitis/chronic fatigue syndrome in a large prospective cohort of U.S. nurses Palacios et al ABSTRACT Background: The incidence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), the rates of both under-diagnosis and over-diagnosis, and the nature of...
Back
Top Bottom