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It is as sure as the blueberry flower. Every spring there is a solid uppercut from the LP-activists, more than anything showing contempt for science, for the majority of patients and generally just trashing trust. Now blaming NAFKAM instead of discussing the real issues. Never asking why some...

Yes. Both CBT and LP are equally fundamentally wrong, when intervening like taking care of root cause. That is just an horrible way to approach ME. But I actually think LP is far more dangerous than CBT. In most cases CBT will give zero effect, may also harm. But LP will to a greater extent...

It is quite a dilemma. It would be terrific if we could settle the total lack of effect, the harmful effect of LP for the vast majority of ME-patients once and for all. If done properly, this study would bury LP as a sound intervention for approx 9/10 of correctly diagnosed ME-patients. But the...

It is a given that LP will harm many ME-patients. Especially thinking of longstanding patients, that for a number of reasons, more than anything motivation and exceptional endurance, in many ways have done exactly what LP says you’re supposed to do, just carry on. Well, we know quite a lot of...

Priceless. Feel sorry for her, but more than anything I had a good laugh. Her own words: Puzzle piece by puzzle piece, got groundbreaking insight, and then managed a complete cure. Healing will start within days, it will take maximum 6 moths to heal yourself completely. She says it is not...

There is a wide range of severities between people with ME, and within the history of many individuals with ME. My own ME has gone from mild and being able to work part time with great difficulty and lots of crashes, to mostly bedbound. From my experience I'd say I have had the same illness...

I very much appreciate the work of Fluge and MeIla and the rest of the team. They’ve done a heck of a job for many years in a professional, cautious and emphatic way. Gained knowledge and also built a valuable bio bank. Hope they’ll stick around, if able to get the necessary funding for future...

No patient should be surprised of how insanely bad knowledge is, but good to see it presented like this, even if not in a journal, even if only 44 questionnaires were analyzed. There are no surprises here. 98% of participants would go for GET.. The only positive here, if one looks at it in a...

The inconsistency among these people are truly amazing. They spin same things in every possible direction, always blaming patients. So what does “social contagion” imply? A logical take, would be that the numbers aren’t real, that patients make up a diagnose all by themself. How can that be?Who...

Shit. That is a whole lot of shady people coming together. Trust is not the first word that springs to mind. My greatest concern here is this: you select a bunch of the so-called “sickest”patients, those who by accident/chance or the very rare advice of actually taking care and pace themself...

Last days there’s been a couple of warnings from ICU informing that some patients probably will experience long term consequences of covid-19. It addresses the need to study this more closely, and also the need of suitable rehabilitation for these patients. These concerns are especially...

Everything is dealt with perfectly. It’s a thing of beauty. Medicine never fail and everything is discovered. If no answer already, it does not exist and/or it’s all some sort of failure by the patient. Period. There is no such thing as being chronically ill, even if we can’t intervene in any...

Ok, it’s very limited, but still good to get some information and thoughts on this. Not worrying much on Corona in advance, catching it and dealing with it. Optimistically I guess it works out just fine. At the same time when reading this, I get curious about other patients, when it comes to gut...

The major obstacle is everything that’s not in place, the lacks and all work that needs to be done in medicine. It all starts there, and when messy beyond, no surprise it’s messy full circle. I find it fresh and welcoming that somebody looks more closely at this from a judicial point of view...

Yes, good point. I would understand the reactions from primary care, the frontline, if they where blamed for the situation, but they’re missing the point. This is obviously a gigantic systematic and structural problem, from deep within medicine and all they way to clinical practice. And...

Ok, I’m mixed with this Bragee. As far as I know, he’s quite a familiar guy in Sweden. Don’t know if that is good or bad, but he surely gets attention. He’s quite a new player in this field. Bringing some freshness may be good, but he seems somewhat over-optimistic and quite categoric in his...

Yes, this is exactly the problem with “evangelists“, missing out an all other possible explanations for improvement/recovery. Agree with the ones you list, and when it comes to ME-patients, I would also add looking more closely at how the patient actually got along early on, getting the proper...

The text is quite a mess. For now, just want to oppose the extraordinary oversimplification, when it comes to so-called maintaining and perpetuating factors. As we know, this is deeply rooted among BPS’ers and the same oversimplification is used as some kind of explanation here as well. Who’s...

Yes, that’s pretty unfortunate for her. But I guess running a story on possible craniocervical instability surgery and crowdfunding and ME in a major newspaper, sparks all kinds of reactions. It is a given that this sort of story creates a lot of noise and mess. I agree on the strategy of...

According to he’s resume, Espolin Johnson have some clinical experience from the 80’s, but he is mainly an “insurance-guy” and later an historian who likes to tell personal stories.. It is very disturbing reading he’s attitudes and views on what he calls “fatigue”? No wonder it is all really...