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I didn't recognise that Methylphenidate is Ritalin (brand name) until doing a search. Some years ago I re-entered the medical system here in the US (finally having secure insurance though my wife's work that I wasn't afraid to use). I knew that when I presented with classic multi-decade ME/CFS...

Yes, SEID is one of a number of alternative names that have been floated and advocated for over the years. It never caught on. To my ears "exertion intolerance" has a strange ring. Seems to have been an widely unpopular choice. A rose by any other name is just as thorny (apologies the Bard). Bill

I agree. A proper criteria for defining our illness should include the phenomenon currently called PEM. Those (like myself) who know their illness as CFS experience PEM that's just as real as those whose people whose national naming preferences lead them call this illness ME do. The only...

Thank you for your efforts David! Bill

Not at all. CFS is a "syndrome" (which appears to be an accurate descriptor of this illness as it is manifested in people with this illness, and it isn't "chronic fatigue (sans PEM). There is no established difference between ME, CFS, ME/CFS, CIFIDS, or SEID. All names for the same thing...

ME International may have a "position," but they have no evidence to support their contention. Speaking in absolutes when we have no biomarkers or conclusive proof to support such claims is counter-productive and divisive. Bill

CFS is precisely the same thing as ME. The only different is the name. The US chose a different name that used in the British Empire. There are no other differences. Zero. And ME unfortunately is burdened with a name that seems highly inaccurate, given the Latin. Chronic Fatigue Syndrome is...

I'll be getting vaccinated the second I get the opportunity--and I'll be doing everything I can to stake out my legitimate place in line until then. I've suffered from 36 of post-viral illness and do not want to endure (or die from) Covid 19. In the balance of risks I'll take those of being...

I have never pictured a hospital per se as a place I'd ever wish to be, but I have had visions of being at a sanitorium where I'm propped outdoors in a very comfortable wooden lounge chair with nice cushions and covered with soft blankets as I drink in the sun while gazing out towards the sea...

Yes, but. When I first got sick back in 1984 I felt like I was hit by a viral freight-train. Out of the blue. Then I had positively crushing fatigue that put me to bed for months and there were a host of other viral-like symptoms that were really unmissable. Swollen glands under my chin and...

Even when I'm puttering in the garden, I find myself doing one job (say one that involves bending over) and then shifting to something else, then something else, and so on. Trying to mix up the types of exertion. My wife sometimes wonders if I'm just highly distractable, but there is a method...

Over the past 36 years "pacing" has been the central strategy that I've adopted for trying to manage this illness while trying to have a life. As a tangent--like many of us (I'm sure) I felt I "invented" the concept of "pacing" (if not the term) independently way back in the early days of my...

In my case, I never experienced hypoglycemia-like symptoms prior to getting ill with ME/CFS and that remains the case today (36 years later). I do love good food and like to cook. I'm a large athletically-build man, but in recent years I've been packing on weight. All on the inside (visceral...

I managed to play in a few cricket matches here in Los Angeles about 25 years into my ME/CFS. I didn't play well, or in a very competitive league (what you all might call Village Cricket), but I did it. Howzat! Bill

Rats! I was afraid you'd say that. Yet, as always, I appreciate your honesty. Bill

What do you think is accountable for the incredible brain-fog so many of us experience? By many measures, I was once considered a person of very high intelligence. Many days now I feel highly compromised. As if the impulses in my mind have to swim across synapses of heavily viscous fluid. And...

Do you feel there is any evidence of brain inflammation in people with ME/CFS that's driving our typical symptoms? Bill

That's a reasonable point. As is wanting a very big data set to back up the claim. Bill

I can only speak for myself, but if the video was designed to boost my morale, it has had the opposite effect. On hearing that a mutation had been identified that ALL ME/CFS patients must carry--my hopes soared. I even shared the news with family--something I never do, out of caution. To then...

Ron Davis' video linked above offered zero context about how common the IDO2 mutation might be. Further, he seems to suggest that ALL ME/CFS patients carry the mutation as if this is a significant finding and it is the finding that seems to drive his hypothesis. Without including a reasonable...