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Well-written and accurate awareness articles keep coming -- this one from the January 11, 2018 edition of the Arizona Jewish Post: https://azjewishpost.com/2018/disease-nearly-keeps-winner-from-jewish-women-who-dared-awards/ A few excerpts: "On this day, in the spring of 2003, I pushed past...

The success of the #UnrestPBS Twitter chat far exceeded my expectations. Read the Twitter thread here: https://twitter.com/jenbrea?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor

Hi @Arnie Pye , I can't imagine the UK version being different from that available in North America. When we watched our Unrest DVD a couple of nights ago, our biggest frustration was figuring out how to turn off the English subtitles. After many attempts, we eventually were successful. So...

@Arnie Pye Unrest is available on DVD -- mine arrived in the mail two days ago. Here's a link to the purchase site: https://www.unrest.film/store

@Binkie4 As far as I know, The Independent has never been published in Canada. I accessed it through "PressReader" on our library website. There are two formats available -- one that looks exactly like the printed newspapers "of old", and one that supplies individual articles according to...

Good morning (for me), everyone. I'm glad to see @Nathalie Wright is receiving the accolades she deserves for this article. Yes, it is published in the print/paper version of The Independent. I was able to access it for free through my city's public library. It covers most of a four-page...

Here's an excellent article published at independent.co.uk, plus on a number of other news sites: "Time for Unrest: Why patients with ME are demanding justice A new film sheds light on a condition that is largely ignored. Nathalie Wright reports on the struggles patients face to be taken...

Does anyone else think the researchers' interpretation is backwards? Instead, perhaps they should have stated that those who experience severe symptoms were less likely to have household incomes of more than £15,000.

@Binkie4 Your recollection is correct. When my blood was collected, it was done at a temporary clinic specifically set up to do so for this study. Collection was done by a trained staff member who immediately "fixed" the sample. Here's what Doctor Simpson's documentation said about this...

I met Doctor Simpson in the early 1990's, and provided a blood sample as part of his study into blood cell shape in people with ME. Although the report I received didn't provide an effective treatment recommendation, it was interesting to have another possible confirmation that my diagnosis was...

Here's a link to Ron Davis' most recent research update -- received in an email today. https://www.omf.ngo/ron-davis-research-update-video/ Watching the video will require signing in with your name, email address and country. ETA: The registration page has been removed. The link above now...

I have one possible interpretation of the above statement, based only on my own experience. During my early ME years, I consistently felt absolutely dreadful, but I also did quite a bit more (both cognitively, and physically) than I do now. Overexertion didn't make my symptoms significantly...

If I were to use an analogy to explain me with ME, I'd be a "used car" -- the gently-used type advertised as having been driven by Grandma to get to church on Sundays. It looks great on the sales lot with shiny new paint and clean upholstery. And, it would pass a short test drive around the...

@voner , this matches my experience. I first became ill at age 12. I missed several months of school before gradually returning part-time. By the following grade, I had fully recovered. Unfortunately, I again became ill at age 32 immediately after an upper respiratory infection. This time...

Not exactly a review, or article, but here's a link to the text of an email received today from Jennifer Brea. It provides an update regarding the success of the #Time for Unrest campaign since it was launched three months ago. http://mailchi.mp/unrest/looking-back-at-an-incredible-year A few...

Fantastic news -- 'Unrest' has advanced to the next stage of Oscar voting. It is now among 15 documentaries from which the Oscar nominations will be chosen. Here's the announcement from Jennifer Brea: http://mailchi.mp/unrest/this-is-huge

@Wonko I've never considered the qualifier "at some point in the illness" to mean that everyone, or almost everyone, comes out of the bedbound stage. All I recall is that this is how the situation for the most severely-affected patients was frequently described in the past. Recently...

Based on my understanding, what is often omitted from quotes like "25 percent of ME patients are homebound/housebound or bedbound/bedridden" are the words "at some point in the illness" (not necessarily permanently). For me, telling partial truths about ME only add to the credibility problem...

I concur with @large donner , @Three Chord Monty and @Webdog . Although not a horrible article, it left me wanting more. At times I suspected the writer actually was talking about "chronic fatigue" as an amorphous state of health, as opposed to ME. There were too many references to...

@Sasha I'm the same. Although for me it's worst when I'm out walking, it also happens inside the house. I have one shirt with buckles on the outside of the sleeves at upper arm level. Every time I wear it, I'm reminded that I go through doorways with a list to the left, because I can hear...