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Kings’ provision of lawyers “when he needed them” is concerning - why would he have needed them? If it was for his involvement in legal disputes about injury and/or disability then it’s not really about science anymore, is it?

Yes. Why is this metabolism disrupted? This is the key.

Those articles tied together so much for me when I was first learning about ME. Without them I could not have made sense of my daughter’s experience with doctors which was clearly due to the politics and issues around ME/CFS. I am so grateful for those resources.

It has been cited already: https://onlinelibrary.wiley.com/doi/10.1111/apa.15084

The study is supported (funded?) by Omron Healthcare, a medical devices company whose mission it is to “...do everything we can to minimize the effects of a patient's healthcare condition. To enable them to get more out of their lives because they aren’t controlled by their condition”. If...

I actually wondered whether that article was paid content.

How did you find the article OP? It doesn't appear in any of the sub-menus on the website, and curiously there is no other actual content on the website. I think it's best not to click on the link. It's really rubbish, I mean: Which is it? Many, or some?

Strikes me that redefining desire for social justice, or even just justice, as envy, is an effective political strategy to excuse a lot of what is wrong in this world.

17 papers were removed during eligibility determinations due to “No baseline risk factors of fatigue over time (n= 17)”. Not sure what that means?

http://twin.sci-hub.tw/6390/5b3cdd73f9051196c6ebb66893f71948/hulme2017.pdf

Disgusting. A parent who is over-interested in their child’s loss of function? Get out of medicine you psychopath.

Abhijit Chaudhuri and Peter O. Behan 2004, “Fatigue in neurological disorders”, was about fatigue caused by faulty NMJ signalling and autonomic dysfunction, not “mental health”, defined as being well-being in thoughts and emotions. I think this is what I find most frustrating.

Thanks @glimpsesofme, I really enjoyed reading your response. My thinking on ME as a neuro-immune illness is of a receptor immune response which results in a messaging defect, while non-immune ME (or CFS) is of the neuro-biological maladaptation described above. I think it is possible to recover...

The model of ME described is a serious neuro-biological maladaptation, not the “old wine in new bottles”, not-a-real-disease Wessely model. In accepting that ME is a neuro-immune or neurological illness, I accept it involves the brain.

Loved it. Earnest compassion.

I am so resisting the urge to suggest it's mass hysteria...

I had what was thought to be a bout of severe vertigo, but in my medical notes it says “+ve cerebellar signs” so I wonder whether my inability to walk and subsequent clear ct scan were cerebellar dysfunction and not vertigo? I was extremely stressed at the time, beyond what I think a person...

Who is the anonymous commenter I wonder? I would love to talk with her.

I couldn’t help wondering whether someone maybe dropped an acid tab into the street vendor’s rice cooker, especially as the girls carried out were all regulars. How bizarre to diagnose mass hysteria.

You missed my point. My point was that the boy more likely died because the bird was toxic, or something else he ate was toxic, or he had a congenital heart condition or a burst aneurysm in his brain - any one of those possibilities is more likely the cause of the boy's death, than him...