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Ps, I got tired and forgot to add the chair was really great for POTS even fully upright and really good for dizziness, breathlessness chest pain and confusion that comes on when standing. That’s why I think it’s worth persevering. Massively reduced aerobic activity seems to really help me...

Hello, I am sorry to hear this. But it does resonate for me. I have an indoor chair but I haven’t been able to use it much because it wasn’t adapted well for me. It’s in the shop for alterations now. But unrelated to the above the movement made me nauseous- Mid Wheeler, for small turning...

Brilliant, fingers crossed. I’d of thought something like that would have been long available, a significant gap in medical technology. The cuff can be so painful, especially when you’re trying to get repeat results in a single day.

:)

Heartbreaking.

Good.

Really good story in this video. Recommend. But the background music is painful. Take care kids. Option for mute & subtitles, so don’t know how accurate they are.

I can believe this :(

I’d guess many of us understood that the outcome was an absolute certainty. But, even without the element of surprise or disappointment, to be faced with the results of these semi regular reinforcements of the status quo is quite horrible. There isn’t any attitude or study to insulate...

Over & over again….

Indeed. More hospitals. For everyone. Our country hasn’t been training doctors, or paying the ones they have enough, or protecting them at work with PPE in this pandemic era, so we have too few. So we get less and less medical care for more and more patients.

Almost certainly.

Absolutely. TfME don’t seem to be on the same page as many of us in terms of what is required, or the means by which we could move the dial. I don’t think an individual or group that would say what was required & stand firm would be allowed to participate. If allowed I don’t know how many...

That is good.

Excellent letter @Grigor. Such important work thank you.

Mmm. I should think so.

Yes. & MEA…

Yes.

Well done & thank you @MittEremltage! X

Thank you very much for this! A detailed explanation really helpful :)