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Hi Kalliope, You wrote, "Additionally, the hallmark symptom of post-exertional malaise means that the activities at the assessment could trigger a worsening of symptoms that is not seen until days later." Do you (or does anyone) know when the word "malaise" was first incorporated into the case...

Thanks for the warning. My grandson is a 3rd year medical student, and I've never tried to "educate" him about ME/CFS. I've never asked him what they are teaching about the disease. I'm waiting.

It is a great comfort to me to come to this website and read serious discussions by smart people.

Yes, Ron Davis understands that better than anyone.

Nothing is easy for severe, bedbound patients.

Not most friends? Some family members? Contemptuous doctors?

Thank you for pointing this out! I am desperate for lab tests that separate severe patients from others. Exercise tests are of no use to severe patients.

To me, that is the most profound statement in the entire discussion. I believe that most people look upon malaise as a psychiatric symptom. I've never understood why people who have exertion-induced (not exercise-induced) muscle weakness and exertion-induced general loss of function refer to...