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if so many people here think that Chris Ponting is a good candidate who could significantly move ME/CFS field why not to do a crowdfunding campaign for him. I think it could bring 5 mil. Eur a year. We did it in the past with OMF, Lipkin, Rituximab and it worked. 5 mil. is not 1 billion but it´s...

I think the diseases which you mentioned are mostly not chronic. Do you think that it´s also possible in chronic diseases or how you call it different clinical presentation? Then would it be possible to treat them with the same treatment if we would find the cause?

you are right, I mix it because in my language it´s different :-)

Is it possible that the same cause can lead to different diseases and it depends on for example which system the cause hits in our body but also another way around that different causes can lead to the same disease? For example we have a tree with 3 branches. These 3 branches start from the...

If I understand correctly the saliva samples donated to DecodeME will be used for SequenceME study. How much time does it take sequencing of 10,000 participants and then to analyze the data?

I dont know if this will be usefull but from my 25 years observation (I have mild ME/CFS and I am ex profesional sportman): 1. the muscle weakness came immediately after getting ME/CFS (the problem with stamina, not strength) 2. the high heart rate came immediately after getting ME/CFS 3. why...

For me the biggest question regarding to our muscles is - we have strength but very bad stamina. I think this question has never been answered. I can do regurally an exercise but I will not improve my stamina too much. For example I tried to do daily push ups. At first I was able to do 10 push...

Now when I read this thread I would say that it´s another kind of malaise, it´s different to feel poisoned but it´s also different to an ordinary ME/CFS malaise which I have every day. The question for me is if it´s something else than the normal hangover. It´s definetly stronger so we can have...

I also used the term feeling poisoned the next day after drinking a bit more alcohol but I am not sure if it´s accurate. In my case it´s definitely something else than my "normal" PEM, I feel somehow destroyed, unwell, like after an accident with a truck but difficult to describe. Even the day...

I put "worsened "hangover" effect the next day. Somehow poisoning but it´s difficult to describe it. I can drink glass of wine or a small beer. Sometimes I drink 2 beers but the next day I feel bad, I think it´s a bit different to a normal hangover. What is strange that if I am very exhausted...

At least in my case it doesnt fit together. The first 8 years I had a mild case of ME/CFS. I couldnt do sport anymore but I tried to walk a lot to keep my condition even if I was often very exhausted. My cholesterol level was always perfect but I had high level of triglycerides. Also my BMI was...

Here I also would ask the question. Are the patients who are deconditioned able to do 2 - 3 times more activities from one day to another day? I have ME/CFS for more than 20 years and I saw a lot of the same stories. Many patients didn´t know what´s wrong with them so they pushed themself...

I dont get this "lowered effort preference". I have ME/CFS since 2000. First 8 years I had full time job, I did sport (always felt terrible after), walked at least 6 thousand steps a day if it was 40 degrees or minus 20 outsides. Had hobbies, climbed 2 500 m hills one day, in the evening I...

In my case it was the same. When I got sich I was professional football player. After getting pneumonie (possibly mononucleosis) I have never recovered. I got immediately muscle weakness, felt strong lactic acid accumulation like never before, trembling of muscles, higher heart rate...this...

Do we know if there are ME organisations preparing a project for this opportunity?

Will he try to check her work or the methods being used? Did he say what he thinks about?

In my case I have always muscle weakness and lactate accumulation. If I push myself I still have muscle weakness, then very big lactate accumulation which start to be very unpleasant and I start to feel unwell. I think muscle weakness is part of being unwell. I have impression that muscle...

I really like these crowdfunding campaigns. I think we could use it more to get some money to our researchers and advocates.

Are these findings similar to multiple sclerosis?

I ask myself why ME/CFS researchers didnt do such a study already long time ago when there is a solid chance that it show us right direction. I know that it´s probably the question of money but I think if we put all our community together we could find money for such a study already long time ago.