AfME were present on this thread where I posted on 31st August 2018:
https://www.s4me.info/threads/action-for-me-the-pace-trial-and-behavioural-treatments-for-m-e-position-statement.5532/page-6#post-100457
And I've posted directly to AfME here on other threads on the same point previous to...
By the way, I have improved over the last 5 years, so AfME should be listening to me. I've done it by not following their advice. I've done it by doing my best to create the conditions where improvement can occur if it's going to, which means cutting back all activity you can to baseline if...
No apologies necessary. But this:
Describes me perfectly. It leaves out PEM and all the rest of it, but what is in that description applies to me. Their advice in the leaflet about pushing boundaries is totally inappropriate, it would lead to a deterioration to moderate or severe. I've tried...
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