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  1. Snowdrop

    A biopsychosocial model of severe fear of COVID-19, 2022, Nürnberger et al

    Wouldn't this have been a more useful study if it had been about why people are afraid to get Covid vaccination? Now with the vaccine covid fear (such as it might have been / I doubt this paper contains any hint of useful knowledge) is not really an issue. And again, just from the...
  2. Snowdrop

    Editorial: A research agenda for post-COVID-19 fatigue, 2022, Wessely, Knoop et al

    And this bit: All my bold. Say whatever about any of it on either side. What are the real world reality results? The result should be that people are well and able to go back to life. Not just answer questions to solicit a positive response. This has not happened. Their treatment has...
  3. Snowdrop

    Is Long Covid a type of ME/CFS?

    Giving it some further thought it occurs to me that as one is improving whether in a linear way or up and down it would be quite normal to think that this was 'on the way to recovery' and therefore think in terms of 'recovering' at least. There will be some who do. I'm not convinced anybody...
  4. Snowdrop

    Is Long Covid a type of ME/CFS?

    Sounds like the prevailing attitude is, so you felt really crappy but now you don't feel as crappy as before = must be recovered then.
  5. Snowdrop

    Government and Insurance companies - establishing the BPS model

    Collecting the stories of many people for whom this attitude was the case (disbelief of illness and disability until becoming ill themselves) could prove to be helpful as a group letter that is shared on either social media or through a sympathetic journalist. I have seen here on S4ME some...
  6. Snowdrop

    Neuropsychiatric Treatment Approaches for Functional Neurological Disorder: A How to Guide, 2022, Finkelstein, Perez et al

    The funding seems novel. http://www.baerfoundation.com/people/ I'd don't understand why this foundation would see this as a legitimate research area based on their interests.
  7. Snowdrop

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It's possible that you're right @Esther12 and that the people who speak without checking their attitude and the facts don't do us any favours. But IMO they don't do any actual harm either. The people who read the comments and then stand behind Wessely and co were always predisposed to do so I...
  8. Snowdrop

    Funding of ME/CFS research in the UK

    King's Health Partner's Academic Health Science Centre: https://www.kingshealthpartners.org/about-us Governance: https://www.kingshealthpartners.org/about-us/our-governance Mind and Body Champion: https://www.kingshealthpartners.org/mindbody/champions More on Mind and Body...
  9. Snowdrop

    Anticipation of and response to exercise in adolescents with CFS: An experimental study, 2021, Loades, Chalder et al

    Always with the intense focus on exercise and how they can get it to produce the results they want. They need to go away. But given that they could also learn to be more nuanced with regard to anxiety -- it's not always (or even mostly) about anxiety as psychological response -- but this group...
  10. Snowdrop

    Questionnaires - design, validation and use in ME/CFS research - discussion thread

    I've just found this thread. If there is anyone in Toronto who might know about this it would be @ScottTriGuy. But His name is not coming up as available so I don't know if he reads anything here.
  11. Snowdrop

    Funding of ME/CFS research in the UK

    And if you haven't found the money when looking for it why is it not transparent -- as it should be.
  12. Snowdrop

    News from Scandinavia

    @Anders_Vang Yes, thanks for the context which I don't have and of course matters when responding to things. Different countries will have some differences in the challenges they face vis a vis the BPS lies. It's even possible she provided a larger message which was then picked through to...
  13. Snowdrop

    New Zealand: ANZMES

    I think it is always a good idea to keep us all informed of what supposed charities for ME are up to wherever they may be. Charities, especially if not large often can work in a blind spot were they can do whatever and the few people who notice and speak up get dismissed. But if people...
  14. Snowdrop

    News from Scandinavia

    Yes, I expect you're right and I did think of it after posting but I feel that while the stigma comment is very valid people who speak publicly to the press need to really be on top of things. The stigma issue (again while valid) is a soft issue and can only ever be an opinion even if true...
  15. Snowdrop

    Positive Psychology; Positive Thinking

    Moved post Don't know where to put this so will park it here. An article that delivers an opinion contrary to the usual. A bit of a blow for the ubiquitous positive thinking your way through everything...
  16. Snowdrop

    Fatigue, patient reported outcomes, and objective measurement of physical activity in systemic lupus erythematosus, 2016, Mahieu et al

    I agree. It always looks like they only think in terms of the lab and not people out in the real world living real lives. Maybe they need more 'work / life' balance. :D
  17. Snowdrop

    Neuroanatomical anomalies associated with rare AP4E1 mutations in people who stutter

    Not ME related but stuttering has been associated with anxiety. Apparently they think they have found underlying biology and are working on a drug treatment. Lucky stutterers (well maybe). Here's the research abstract (2021): https://pubmed.ncbi.nlm.nih.gov/34859215/ Here's a Canadian...
  18. Snowdrop

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Thank-you for that. Very straight forward communicating. Clear and transparent in it's meaning. Unlike the BPS who in trying to defend their position use convoluted and tortured language.
  19. Snowdrop

    Funding of ME/CFS research in the UK

    Moved posts Does anyone here know, Is the funding that comes from the NIHR for the BPS studies from the mental health section? Here are the leads in the various areas at NIHR: https://www.nihr.ac.uk/about-us/contact-us/directory.htm Trying to 'follow the money'
  20. Snowdrop

    News from Scandinavia

    I expect my opinion can be annoying but I don't think the rebuttal from Catherine Engsig was particularly helpful. No one had said anything about stigma so why go there. Better to have rebutted the idiotic view that the psych studies were scientific and that NICE reviewed them and found they...
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