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I wasn't clear how they are labelling depression diagnosis. We know things like HADS can be confusing as they have questions around are you doing less (which can be for other health reasons). If they are taking a doctors diagnosis then I would wonder if the are depression diagnoses prior to...

I have been wondering recently if there could be something in monitoring brainwaves (there are some available datasets for non-ME people). But I wondered in terms of monitoring mental activity. However, I'm not sure how cumbersome the sensors would be as they would need to be on several places...

I think this is the big problem. AI may also not be cynical enough when summarizing papers unless you have prompts that explicitly ask to assess the methodology. There are areas where AI could help such as drug repurposing which is where the google co-scientist is targeted. But I suspect there...

Have you seen googles co-scientist Accelerating scientific breakthroughs with an AI co-scientist

You could ask the pharmacist if they can do it for you.

These days careers seem to depend on the tier of journal or conference where things are published and so for career progression researchers need the right publications. That is just the system and researchers who don't play the game either need to be very good (in which case they probably have...

That is the point I was making about discovery research being the thing we need - hence the MRC. But the NIHR is more sympathetic to making an effort as the delivery plan is being pushed within the DHSC where they sit. So one hub isn't good but what about the other one? Which wouldn't...

So how do we get bright people thinking about ME and doing experiments. Currently its researchers with connections to people with ME. There are some very good people my comment was related to a commend on increasing numbers which I don't see. It doesn't matter where they are but this discussion...

I see it as a downward spiral - researchers wrote a letter around this which was shared with the hub proposal Microsoft Word - Letter from ME Researchers to Funders which I think outlines the issue with reviewers: For example And also saying given that they would not recommend researchers...

The MRC point out that they have very few proposals for ME and hence they aren't rejecting many. I would say we have reached a situation where researchers are very reluctant to put the effort into writing proposals as there is an expectation they will be turned down. Its much easier to work in...

I would liken it to investing in start ups. Identifying the winner is very hard (too many factors) so investors will spread their investments over multiple companies with the hope one will win. It may be that progress will be made by one group but identifying that group is really hard so I'm...

No its about style of comments more generally. I see comments basically saying either we don't need to do anything or why create structure to achieve change or wouldn't that just get the wrong research. What would be more interesting to discuss and a more constructive discussion how we can...

To be clear I don't think it will happen - the situation as I see it at the moment is that the MRC aren't interested in doing anything - I think the situation with the DHSC (and hence NIHR) is different but they fund translational research not discovery research (which is needed). If it were to...

When reading comments I am reading some people basically saying that they 'don't want change' or only if a system can be proved to be perfect; or even just wait and something may spontaneously happen - and I really find that quite depressing. The thing is any proposals need to be negotiated...

I don't know what happened there?

The hub proposal was modelled on one for mental health that the MRC has funded - they can't say but we don't have the structures that allow us to do something. The MRC is very very conservative as far as I can tell in the way it is organized it is basically a club for funding existing research...

But what will drive good science happening in this area. Without taking positive actions nothing will happen we need to be enabling systems where it will happen not waiting and hoping.

That is exactly my point. We are being far too timid and worried - "but what if BPS stuff gets funded". If we always take that approach we won't push for more research money an nothing will change (in the UK - money is being spend elsewhere). In all the discussions I've had with the MRC, NIHR...

I wouldn't be at all confident. Its not about having data its about having people interested in taking the next steps and currently in the UK there are very few who are interested. Why would a researcher work on ME even with interesting data when they know they will struggle with grants and the...

Having worked with Stephen on this he has been pushing very hard to try to improve the state of research for ME and working with others (people like Chris Ponting but also the charities and patients) to try to get change.