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I don’t know if this video is geoblocked, but we have world MotoGP champion, Casey Stoner, as our new ambassador! This short interview was on the Today show, a major morning TV show in Australia...

OMF Foundation Australia Launched Australian ME/CFS Research Centre Launched! Emerge Australia has partnered with Open Medicine Foundation to launch the fifth OMF international research centre in Australia! Open Medicine Foundation Australia will be located in Melbourne, and Chris Armstrong...

Without getting too off topic, I think the chances of us using COVID-19 for leverage for more ME/CFS funding in Australia are pretty low. So far, out of a population of 25m, we’ve had just 27,000 cases. The number of long-haulers is so low that journalists have struggled to find people to...

Yep, basically. TCRs are similar to NIH’s RFA’s. Getting them to issue one is like pulling teeth. NHMRC hopes that TCR’s will increase the likelihood that researchers can later go on and win other NHMRC grants (that the TCR projects will develop sufficiently to become more competitive in other...

One of the good things about the TCR was that NHMRC required applicants to show how patients would be involved in their projects. This meant that several research groups approached Emerge Australia either for input and feedback on their applications or to discuss how patients could be more...

In case anyone is unfamiliar with some of the names: Ken Walder has collaborated with Michael Maes and Michael Berk on ME/CFS work in the past. Michael Berk is also involved in this project. Paul Gooley’s project will test Chris Armstrong’s nitrogen hypothesis (which Chris also received a...

Overall, we’re pretty happy with the projects chosen. No psychosocial projects were funded, which was the major concern, so that’s terrific. There were one or two others which we would have liked to see funded, but this is a good use of the funding. And, as you say, $3m just doesn’t go far...

@Hutan I did try to look up the NHMRC funding. The grant numbers are really old, so I suspect that the NHMRC grants they list might be for the original Dubbo study. Given how long ago that is, I’m not sure how much benefit there is in writing to NHMRC (especially given the results of the TCR...

Yes, collaboration would be great! Suffering from a spoon shortage here, so perhaps between the two of us we could get enough brain cells together!

The successful applicants for Australia’s $3m ME/CFS Targeted Call for Research (TCR) have been announced. The successful projects: Professor Sonya Marshall-Gradisnik Griffith University Grant: $1.46m Project title: Ion channel dysfunction in the pathophysiology of Myalgic Encephalomyelitis/...

Sorry, @Hutan. Completely missed this. Terrific analysis! @dave30th, any chance you could take a look at this one?

The study is using data from medical records to identify likely ME/CFS cases. The researchers are aware that there are issues with this (ie: both likely under-estimates from patients not disclosing their diagnosis to their doctor and over-estimates if using broad search terms like “chronic...

Really good, solid info. Well done, @Hutan! It covers quite a lot, even though it’s brief.

I’m curious if anyone has compared and contrasted this review with Crawley’s recent similar review on structural and functional MRI studies? https://bmjopen.bmj.com/content/bmjopen/10/8/e031672.full.pdf Thread here...

Zack Shan got a AUD1.2m grant from NHMRC in late 2019 (the first researcher to get a grant for biomedical research into ME/CFS from the Australian government for more than 10 years)...

Thanks, @Hutan. Yes, it’s Zack’s work.

The full paper is available: https://www.medicaljournals.se/jrm/content/abstract/10.2340/16501977-2697

Two Australian ME/CFS neuroimaging researchers to add to the list: -Leighton Barnden -Zack Shan

Sci hub link: https://sci-hub.tw/downloads-ii/2020-06-02/78/10.1136@medhum-2019-011807.pdf?download=true

Thanks for your responses, everyone. You’ve confirmed my instinct to push for having the diagram I posted removed from the project entirely.