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  1. oldtimer

    Public "Being Sick Is a Full-Time Job": A Job Analysis of Managing a Chronic Illness

    I think work is a more apt word for struggling to get through each day. "Job" implies choice, evaluation and remuneration.
  2. oldtimer

    ‘Kind of Awkward’: Doctors Find Themselves on a First-Name Basis, NYT

    Couldn't agree more. I do not want to be friends with my doctor - or my dentist either. Given the nature of what can be discussed, I want a boundary that implies treatment on strictly professional terms. I have a close friend who gets on first name terms with GPs and specialists alike after...
  3. oldtimer

    Pain relief and sedation with ME - any issues to be aware of?

    I can only speak about my own personal experience. Over about 40 years I've had at least 14 various surgical procedures with sedation. I had ME at the time of all of them. The only problems I've had are temporary headaches. Nothing has ever affected my ME.
  4. oldtimer

    Contribution of individual psychological and psychosocial factors, Dubbo Infection Outcomes Study, 2019, Cvejic, Hickie et al

    It's not possible to untie a Gordian knot in a methodical way. In the legend, Alexander thought out of the box and slashed it with a sword. I think Lloyd has found he tied one and simply declared his undone. Easy peasy. Who will be next I wonder:emoji_thinking:
  5. oldtimer

    News from Australia

    This crowd is in one of the most expensive areas in Sydney. They offer treatment for 53 different conditions. It is run by an integrative medicine practitioner. Nuff said.
  6. oldtimer

    Treatment for that searing muscle pain?

    @rvallee , your description is exactly what I do too, except for the legs. I just copy what years of physio has taught me. It's hard not to flip over the sides of the ropy muscles as you push into them physio style so your "sort of squish it and wiggle back and forth a few times around" helps to...
  7. oldtimer

    Treatment for that searing muscle pain?

    For the burning muscle spasms of fibromyalgia, the hard pressure of the edge of a door frame or corner of a table undoes the knots. It hurts a lot but it works. If that's not practical, heat is my next choice.
  8. oldtimer

    Treatment for that searing muscle pain?

    A while ago I tried a capsaicin cream on my feet for burning neuropathic pain. I soon learnt what real burning was! For about 18 hours I was in severe pain. It was an OTC product called Zostrix I think. It was 0.075 w/w.
  9. oldtimer

    Is PEM a crash? Is a crash PEM? Semantically distinct? Or distinct phenomena?

    I just assumed PEM was the medical term and crash was the everyday equivalent.
  10. oldtimer

    Maximal oxygen uptake and lactate metabolism are normal in chronic fatigue syndrome, 2002, Charli Sargent et al

    This video has given me a basic understanding of energy production and ME more than anything else. It's easy to follow for a non-scientist. I used the information in it to get myself reasonably fit without crashing before some major surgery a few years ago. It's a keeper for me.
  11. oldtimer

    Larry Weed's 1971 Internal Medicine Grand Rounds - and quality management in health care generally

    Terrific video @SNT Gatchaman . It makes me wonder about my own GP's records and whether paper records would be easier to navigate than computer records, or even a combination. For some things, I find I'm less likely to get lost or miss something with well organized papers rather than flipping...
  12. oldtimer

    Visual Imagery and chronic pain - new study at Bath (Jo Daniels supervisor)

    Do people in pain really have images pop into their heads?? I hate to think what they might be. Definitely not puppies and kittens. I'm in a fair bit of pain everywhere all the time. Without painkillers to take the edge off a little bit, all I experience is all-encompassing pain in a "raw...
  13. oldtimer

    United Kingdom: Statement from the RCP and Professor David Oliver, 18 July 2022

    He might mean that he was a doctor treating covid patients (covid medicine) for two years then caught it himself?
  14. oldtimer

    “Unstoppable” documentary

    Firstly, I'm very happy for Ellen and her family. They seem very happy and that's a big thing. But as far as the rest goes, where do you start? Most clients are: High achieving women Type A personalities All of them "are very heart-centred and very driven women" (With enough $$$$ for...
  15. oldtimer

    Is ‘Long Covid’ similar to ‘Long SARS’?, 2022, Patcai

    Could this have anything to do with the lack of recovery for every single one of the fifty patients? (The rehabilitation treatments were initially for 3–5 h a day, 3 days a week (!!) and included physical and psychological.) "Their physical rehabilitation was necessary. The exercises were very...
  16. oldtimer

    I wrote a short story about ME/CFS

    I enjoyed that! I reckon I've been through most of those experiences, literally or figuratively.
  17. oldtimer

    A new science of emotion: implications for functional neurological disorder, 2022, Jungilligens, Perez et al

    :emoji_musical_score:.......anything goes:emoji_microphone:. I was once diagnosed with atypical depression - depression without feeling depressed.
  18. oldtimer

    Trading Lifespan For Health

    If I could take my 7 year old cats out of the equation, I too would be happy with five years of normal life then die. What an amazing gift it would be.
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