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  1. oldtimer

    Poll - In your opinion, is it worth experimenting with therapeutics of unknown efficacy?

    This was almost 30 years ago. The doctor was respected integrated medicine physician who treated CFS and FM at that time. I searched magnesium intravenous infusion in Australia and found that it is used in regular pain clinics as well as other types of clinics. I don't know whether to laugh...
  2. oldtimer

    Poll - In your opinion, is it worth experimenting with therapeutics of unknown efficacy?

    Been there, done that, got the t-shirt. About $10k AUD worth of t- shirt. I had a bad reaction to Mg infusions with plummeting blood sugar. It was quickly fixed by a slice of plain cake. The craving for plain cake was intense. Luckily there was a cake shop close to the doctor's office. I've...
  3. oldtimer

    Grim ME and recovery broken hip with partial replacement op

    I think Kitty is right about it knocking your confidence and I can imagine the older you are the more that would be true. I had a hip replacement about 3 years ago and I was very surprised about how careful I felt I needed to be for the first few weeks, mainly going up and down steps. I didn't...
  4. oldtimer

    Long COVID: major findings, mechanisms and recommendations, 2023, Davis, Topol et al

    The Victorian Chief Health Officer is responsible for providing advice to the state government about anything and everything to do with public health and well-being. The government can take this advice or not. It can assign the CHO powers and take them away as it wants. Brett Sutton was...
  5. oldtimer

    New Video: Chronic Fatigue Syndrome is a terrible name

    Great video and just what I need to send to someone I was trying to explain exactly this to only yesterday. I've also written a number of emails to journalists and news outlets lately about it. I'll include your video in future. Thank you @Adam pwme
  6. oldtimer

    Australia – ME/CFS doctors

    Hi Ollie. After many years of disappointments and wasted energy, and a large amount of money down the drain thanks to ME/CFS GPs, I agree completely with Hutan. All the best to you and your partner.
  7. oldtimer

    Blog: ME/CFS Skeptic: 2022: "Looking back at a year of ME/CFS research"

    Thank you @ME/CFS Skeptic . I really appreciate your work.
  8. oldtimer

    Can different degrees of resistance training improve mood states in patients with fibromyalgia? A randomized controlled trial 2022 Vilarino et al

    Here's the link to the Brunel mood test if anyone wants to bother. It's very quick and you can get your score on the spot. https://www.moodprofiling.com/sportscale.php The advice for fatigue includes splashing your face with water. I've never seen that one written down before.
  9. oldtimer

    Functional Neurological Disorders - discussion thread

    She lists ADHD as a psychiatric disease. Well, in such a simplistic contortion this article is, it had to be slotted in somewhere.
  10. oldtimer

    The Rise and Fall of Peer Review, 2022, Mastroianni

    I just watched the youtube critique. This man is my new hero! He went at my non-scientist speed with his explanation and I understood the whole lot without glazing over and giving up. It looks like such a basic mistake I don't understand why it wasn't picked up before publication, let alone by...
  11. oldtimer

    Shingles vaccines, chickenpox, Shingrix

    I had my first Shingrix vaccination last week. For the first time ever I had a reaction to a vaccine, not counting sore arms. I felt very unwell for about 15 hours then I was fine. No big deal but it was a surprise. After just noticing this new thread -...
  12. oldtimer

    Development of restrictive eating disorders in children and adolescents with long-COVID-associated smell and taste dysfunction 2022 Brasseler et al

    "Five of the 6 patients with restrictive eating behaviour reported a reduced appetite." It has always been my understanding that people with anorexia nervosa experience hunger and have an appetite. (https://www.therecoveryvillage.com/mental-health/anorexia/history-of-anorexia/)
  13. oldtimer

    Psymplicity - Harley street clinic and website (UK)

    It's written by their in-house psychologist Mavish Sikander, who "is a BABCP Accredited CBT and EMDR Therapist and CBT Clinical Lead at Psymplicity". Highly paid too I imagine. Someone should put Mavish and her employer straight. Psympletons!
  14. oldtimer

    Feasibility of therapeutic music listening in fibromyalgia: a randomised controlled pilot study 2022 Raglio et al

    Well, from the short snippets, that plunky harp sounds like a beginner playing a boring exercise. I would give it a D and that's being generous. The cello sounds like endless vibrato exercises. The same few notes of the same tone quality seem to be played randomly over and over and over but...
  15. oldtimer

    Long Covid in the media and social media 2022

    @ Art Vandelay . I also left a comment but it's somewhat too late now - the article is off the front page. There's one objection to chronic fatigue by someone called Smart Cookie. It amazes me that there's not mass outrage! My comments often don't appear for some reason.
  16. oldtimer

    Webinar: HE 13: Epidemiological sleight of hand and Medically Unexplained Symptoms, David Tuller, Tues 18th Oct, 2022

    I've watched the first 30 minutes and I'm very glad I did. At last the random pieces relating to the variety of MUS terminology, problematic research, poor study design etc. have fallen into place like the final stages a jigsaw puzzle when you eventually start to see the whole picture. Thanks...
  17. oldtimer

    Shingles vaccines, chickenpox, Shingrix

    Good to be reassured by the effectiveness and safety findings. I'm about to take the huge financial plunge and have the two Shingrix vaccinations. The protection from both infection and post-herpetic neuralgia is far superior. According to nps.org.au, the older vaccine, Zostavax, is only 51%...
  18. oldtimer

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    I only use paypal so I've been frustrated about making these donations until just now when I had the bright idea of using a Visa gift card. I did it completely anonymously with false personal details etc. and it was accepted. I used a 10 minute email address and received confirmation of payment...
  19. oldtimer

    Covid-19 vaccination experiences

    I had the same dilemma in hospital last year. The ventilation system was sucking air out at a great rate, if the roaring noise and the streamers near it were anything to go by, so I decided it was safe enough.
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