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  1. cassava7

    Doctors’ attitudes toward specific medical conditions, Scoles, 2022 (includes ME/CFS)

    Bolding mine: This study uses machine learning and natural language processing tools to examine the language used by healthcare professionals on a global online forum. It contributes to an underdeveloped area of knowledge, that of physician attitudes toward their patients. Using comments left...
  2. cassava7

    Michael Sharpe retires as Psychological Medicine Lead 30/09/2022

    Even if Prof Sharpe remains a “honorary consultant”, I understand that he will see fewer patients — and thus harm fewer of them too. This alone is a step forward. The problematic part is that he has now more time for research projects, so we may expect more annoying publications from him.
  3. cassava7

    News from France

    You could look at the works of Prof Pascal Cathébras — an internist and long time denialist of ME and fibromyalgia who has expressed his support towards Wessely, Sharpe against patient-activists —, in particulier his well known book “Troubles somatiques fonctionnels” (2006), as well as those of...
  4. cassava7

    News from France

    I am French and I have advocated for a ME association. It is absolutely wrong to say that the BPS model is not influent in France. Just as in the US and the UK, the BPS model of chronic pain is seen as the Holy Grail of good healthcare such that all pain centers are based on it. With regards to...
  5. cassava7

    Norway: Article about ME seminar with security

    We could also draw inspiration from activist movements that use shocking but non violent methods that generate significant media coverage. Lately, environmental activists like those from the British organization Just Stop Oil have thrown jars of tomato sauce at famous paintings in renowned...
  6. cassava7

    Use of Alternative Medicine for Cancer and Its Impact on Survival, Johnson et al, 2017

    There is limited available information on patterns of utilization and efficacy of alternative medicine (AM) for patients with cancer. We identified 281 patients with nonmetastatic breast, prostate, lung, or colorectal cancer who chose AM, administered as sole anticancer treatment among patients...
  7. cassava7

    Experimental Monoclonal Antibodies Show Promise Against Epstein-Barr Virus

    Hopefully, an antiviral that is effective against EBV may prevent the progression to ME after being infected. If the ongoing trials of Moderna’s mRNA vaccine also demonstrate its efficacy, we could have a long awaited toolbox against EBV-induced ME/CFS, cancers, MS, and possibly other diseases...
  8. cassava7

    Norway: Article about ME seminar with security

    Thank you for summarizing Prof Rønning’s response, @Kalliope. It comes across as very sensible, in particular the last part: “What the RN movement has reason to fear isn't violence and abuse from ME sufferers, but acceptance that RN's understanding of knowledge is outdated”. I cannot imagine...
  9. cassava7

    Norway: Article about ME seminar with security

    I am aghast at the extreme level of dishonesty of the researchers who spun this small, isolated incident into “throwing a chair” (whether at a speaker or not). Alas, I should no longer be at this point, but it is blatantly unethical to both distort reality and smear a patient community so...
  10. cassava7

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    Perhaps it could be worth pointing out that, in addition to the NICE guideline, EUROMENE’s consensus statement on the treatment of ME also contains recommendations on severe and very severe ME? It shows that not only patients but also clinicians specializing in ME/CFS support such...
  11. cassava7

    Norway: Article about ME seminar with security

    With regards to an act of activism, I think it would be amusing if people stood up in the middle of an awful talk and spilled their coffee on the ground at the same time. Or turned their chairs upside down, rather than throwing one at the speaker. Then there would be no accusation of physical...
  12. cassava7

    Norway: Article about ME seminar with security

    I wholeheartedly agree. Unfortunately, the crux of the issue is that patients do not control what the media put out on ME. Influential doctors do, for the most part, and, sometimes, the media seek responses from patients in articles that are already spun to fit the BPS narrative. Rarely...
  13. cassava7

    Norway: Article about ME seminar with security

    I believe your own experience is insightful, @Jonathan Edwards. You came to this realization because the BPS spin on ME patients did not fit your values as a doctor. However, the general public respects doctors’ opinions, especially on subjects that they do not know much about, such as ME, and...
  14. cassava7

    Norway: Article about ME seminar with security

    The point of attending a conference is to talk about science, and embarrassing a lecturer with good criticism of their work sounds like an effective activist action — especially when it boils down to pointing out very basic, first-year of university errors. Further, harm could very well have...
  15. cassava7

    Norway: Article about ME seminar with security

    If this were the case, would we not have expected to see a stream of medical doctors and scientists coming into the field of ME research when the accusations of heckling and harassment and started? Rather, someone won a Maddox Prize for it and left the field in such a dire state that no...
  16. cassava7

    Norway: Article about ME seminar with security

    It is expected that attending a biopsychosocial research conference on ME/CFS as a ME patient will be infuriating and that any form of anger will be weaponized against the patient community. Therefore, if one thinks that they might lose their temper at such an event, they should refrain from...
  17. cassava7

    Norway: Article about ME seminar with security

    Indeed, noone is suggesting that a violent action should be planned, but one seemingly did occur out of frustration at this research conference. I wanted to highlight the differences between a successful (in the sense of activism) and a failed action, which is what this came to be depicted as...
  18. cassava7

    Norway: Article about ME seminar with security

    This incident reminds of Iraqi journalist Muntadhar al-Zaidi, who infamously threw a shoe at president Georges W. Bush during a press conference in 2008 to denounce the casualties of the Iraq War. He was condemned to three years of prison (reduced to one) and was eventually released after nine...
  19. cassava7

    Activation of the transcription factor NRF2 mediates the anti-inflammatory properties of a subset of [OTC] and prescription NSAIDs, Eisenstein.., 2022

    Highlights A subset of nonsteroidal anti-inflammatory drugs (NSAIDs) activates NRF2 C151 of the chaperone protein KEAP1 is necessary for NRF2 activation by indomethacin Indomethacin reduces inflammation in endotoxemia and gout models dependent on NRF2 Summary Nonsteroidal...
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