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I have a Yum Asia rice cooker. My son who now lives in Japan left it here so it was not by choice. I really like it. Easy to cook rice. Rinse rice, add water to level, select rice type, press start: 40mins later done. I cook bulk and freeze a few portions. Very quiet machine. Easy to clean with...

https://news.uci.edu/2023/10/19/rahim-esfandyar-pour-wins-darpa-young-faculty-award/ Adding this as Whitney’s post about Rahim was concerning.

https://www.meaction.net/2024/02/01/meaction-uk-and-scotland-update-prevalence-figures-based-on-new-data/ MEAction will now use 700000 as the prevalence for UK and Scotland although they note issues.

No. Asked ME clinic and GP. Both refused.

Patient-Led research $4.8M https://patientresearchcovid19.com/patient-led-research-collaborative-announces-4-8-million-in-biomedical-research-awards-for-long-covid-and-associated-conditions/ 7. Understanding the relationship between fibrin amyloid microclots and Long COVID – Dr. Caroline...

@Dakota15 yes - not sarcasm but phrased badly. Online attendance ranged 200-440 ish. (Full stop) However I was a little surprised at the auditorium being so empty.

The ligand used isn’t the most specific as it attaches to normally occurring substances even in healthy controls so produces a slightly noisy image. However the speaker specifically flagged this image and others as showing a surprising signal in muscle and bone marrow. @Kitty

Lipkin described 3 projects he would like funding. Jessica Maya from Maureen Hansen’s group talked a tiny bit more on PD-1 blockade drugs and viral persistence. Nath had slide with ‘cognitive therapy’ for brain fog treatment. Karl Johan Tronstad and David Systrom very good especially for...

Added screenshot here separately regarding a potential GWAS.

Ian Lipkin made the briefest of comments regarding a potential project with 5000 ME patients and a collaboration with Chris Ponting. Slide up for less than a couple of seconds but I did catch it.

Online attendance less than 400 and a nearly empty auditorium. Very strong lived experience testimony so far.

Hardwired to router but video keeps cutting out and screen blurring. Is it me or them? edited: seems to have resolved in last few minutes

Yes agree @LarsSG i don’t trust any statistics re prevalence of ME diagnosis. The term chronic fatigue has done a lot of damage both ways.

If as estimated (forgot where) 90% of pwME are undiagnosed then that would be 13% of population fit in the ME criteria. (Doubtful) Calculation: 1.3% had known diagnosis represent 10% of all cases

Just listened to David Tuller’s interview with Sarah. Also read Janet Dafoe’s tweeted feedback. Original Coroner replaced with new one some time ago. New Coroner ‘found’ her own choice of ‘expert witness’ - Alistair Miller.

This was an excellent presentation and an effective appeal to replicate in a US cohort. Really worth watching even if you have watched Chris before. The Q&A was also useful.

There will be a second opportunity in Jan/Feb according to an email I received.

Microclots not the only focus From the patient participation form there are 3 aims, the first 2 relate to microclots. Aim 3 – We will investigate how exposure of cells to other factors in blood samples from people with ME/CFS affect cellular metabolism or other functions. We will measure the...

https://www.astriid.org/news/astriid-statement-on-autumn-budget-2023/ Astriid consulting focus on long term health conditions in work Good response including ELCI and nice graph showing reasons for why people with long term health conditions can’t work.

Questions/comments after reading pp form Why is timeframe so restrictive (2 weeks starting 1 week from now)? How many pwME would they like ideally? Would they consider home visits for severe pwME? Could do with an easy map rather than postcode with car parks and entrances marked. PwME need...