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Thank you for tagging us - will have a watch :confused:

Apologies - only just seen this. We have collectively made a decision not to join BACME previously and having reviewed that, the decision still stands! So I am not sure we would actually have been able to register!

Thank you for the tag - there is still so much to do regarding educating our fellow therapists!!!!!!!!

Uggh thank you for the tag!

So sorry - work has been a bit hectic and I haven't been able to log on for a bit so have missed this! DId anyone get to see just what it contained at all?

Thank you for these comments. I'll share with Nikki

Ooh thank you for the feedback. I'll share with Nikki. She did work with people who use HRM to develop the survey but this is a really good point

Karen has apparently already flagged some issues with the recommendations relating to fatigue - most of the content apparently relates to movement disorders

https://content.iospress.com/articles/work/wor203168 https://www.s4me.info/threads/post-exertional-symptoms-distinguish-myalgic-encephalomyelitis-chronic-fatigue-syndrome-subjects-from-healthy-controls-2020-mateo-et-al.15620/ this article by Mateo et al from 2020 is an interesting one...

Thank you for sharing all these links - and for expressing your concerns. We have learnt huge amounts from people with ME and continue to do so. Really appreciate you raising concerns so we can try our best to use this to inform our work

Thanks for tagging - I will check with Karen as she has more knowledge of FND than me

Thanks for sharing the post about our book news We deliberated long and hard before making the decision to go ahead but decided it was too good an opportunity to help achieve our aim of educating physiotherapists about ME. We are aiming to provide information about the known pathophysiology...

we did write to the CMO in the middle of wave 1 when he said this in one of the press conferences. Probably worth following up now that Long Covid is more obvious

Good to know thanks for sharing - obviously the amount of challenge about PEM became too much to ignore!

Thank you for the link - interesting reading. The presentation I saw was from Scandinavian researchers - I will add to the long list of things to investigate!

A while ago I saw an interesting lecture on the glymphatic system which they described as the brain's washing machine and they were wondering if this might be linked to the brain fog and other cognitive challenges in ME. I must go and hunt down to see if they have published anything more recently

Thanks for tagging - will log on at work on Monday and see just what joys await (can't remember my log in details to elearning!)

https://www.jospt.org/doi/full/10.2519/jospt.2021.0106 The article is now open access

Thank you for sharing. Will read v soon and comment. Not been a fan of her work so far....

Thank you for sharing. We are truly grateful for so much support. Will keep you posted