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  1. PhysiosforME

    The Times: Infectious diseases expert warns of spike in ME cases

    Please do tag us - it is great to have you all helping us. We are really appreciative of all the support we are getting from people with ME and are learning so much from you all. Thank you for the positive feedback about the podcast - we are planning to do some more so please let me know if...
  2. PhysiosforME

    I'm a physiotherapist. Seeing the impact of Covid on survivors will haunt me forever

    Thanks for the tag - I think COVID has been an eye opener for lots of clinicians in a lot of different ways. We've had some really positive feedback to the couple of webinars we have done recently for the Chartered Society of Physiotherapy and to our Frontline article so really hope we are...
  3. PhysiosforME

    The Times: Infectious diseases expert warns of spike in ME cases

    We're trying to challenge when and where we find inappropriate information - there are some COVID resources on our website so you can direct people there for more information. And we did a webinar for the Chartered Society of Physiotherapy last night on the subject of PVF, PVFS and ME - it had...
  4. PhysiosforME

    Low‐intensity exercise stimulates bioenergetics and increases fat oxidation in mitochondria of PBMCs from sedentary adults, 2020, Liepinsh et al

    Thanks for the question - a bit tired tonight as have just done a webinar for the chartered society of physiotherapy with over 200 physios about post viral fatigue syndrome, ME and appropriate rehab. I will ask Nikki (our resident expert on all things exercise physiology) and come back to you
  5. PhysiosforME

    UK: Physios for ME

    Sadly no - but we are working behind the scenes on that! We just did a webinar for over 200 members of the CSP which will hopefully go live really soon as well.
  6. PhysiosforME

    UK: Physios for ME

    Thank you so much - lovely to read
  7. PhysiosforME

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thanks for this - we were really pleased about the positive feedback. It should go live soon so hopefully will reach more physios as well
  8. PhysiosforME

    UK: Physios for ME

    Great feedback - thank you
  9. PhysiosforME

    UK: Physios for ME

    We recognise that there is still a lot to learn so more than happy to be challenged! Collaboration with people with ME is something we have tried to do since we started as there are so many benefits from working together.
  10. PhysiosforME

    UK: Physios for ME

    Thank you for this - great to hear we are reaching other physios which was always our intention
  11. PhysiosforME

    UK: Physios for ME

    I hadn't seen these so thank you for sharing - we will link to them from our website as they are great
  12. PhysiosforME

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    We replied from the physios for ME account and also all replied individually as well! Karen even got blocked by them!
  13. PhysiosforME

    UK: Physios for ME

    Thanks for the feedback - interestingly it is one of the phrases that really helped my son understand what pacing meant.
  14. PhysiosforME

    UK: Physios for ME

    Today we posted our first ever podcast - you can see the whole team talking about post COVID rehab, post viral fatigue syndrome and ME. Dr Charles Shepherd from the ME Association was our guest
  15. PhysiosforME

    UK: Physios for ME

    I love this -thank you for sharing our stuff
  16. PhysiosforME

    UK: Physios for ME

    https://www.csp.org.uk/frontline/article/we-answer-your-questions Our latest news is that we managed to get an article about PVFS and ME in our physiotherapy magazine. It goes out monthly to 59,000 of our colleagues so we're really pleased. It is also the first time we have seen anything in...
  17. PhysiosforME

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thanks for this Tom - we know we still have lots to learn so always welcome feedback. Thanks for sharing this - we're really chuffed as it goes out to 59,000 of our physiotherapy colleagues and is the first time we have seen anything about avoiding GET in Frontline!
  18. PhysiosforME

    UK: Physios for ME

    Today's news is that thanks to @Njc36 we have managed to get a section about post viral fatigue syndrome and ME in the World Confederation for Physical Therapy briefing paper on rehabilitation and the role of physiotherapy - see page 7...
  19. PhysiosforME

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thanks to @Njc36 we have managed to get a section in the World Confederation for Physical Therapy briefing paper on rehabilitation and the role of physiotherapy - see page 7 https://www.wcpt.org/sites/wcpt.org/files/files/wcptnews/COVID19-Briefing-paper-2-Rehab-PT-May2020.pdf
  20. PhysiosforME

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    This is part of the reason for the feasibility study - to understand whether the equipment is suitable for people with ME (including different levels of severity)
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