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As I've remarked before, a journal allowing the sentence 'CDF, a proxy for CFS/ME' through peer review is presumably one that would also publish a study on the effects of cough syrup on lung cancer in which the primary outcome is 'cough, a proxy for carcinoma'. The bit that jumps out is was the...

Am I right in thinking this is the Hanson study published last year and now becoming open access 12 months later?

http://journals.sagepub.com/doi/full/10.1177/1359105318755264#articleShareContainer (Free full text - mentions PACE)

Note: deals with 'chronic fatigue' rather than specifically looking at ME/CFS - the high baseline level of 'chronic fatigue' in the control group suggests it's a broad definition that's been used. Posting here anyway as my own initiating infection was Giardia...

Citation needed. The author seems to be presenting a number of theories as fact. And the suggested response seems to be to run as many expensive tests as possible and then throw as many 'natural' remedies into the mix as one can. Colour me sceptical.

I think a lot of systemic autoimmune illnesses can have a large number of potential symptoms. Lupus is the one that immediately springs to mind, although I may well be being influence by watching too many episodes of House ;-) (Less flippantly, I think one of the US autoimmune patient...

Done. One comment/question: on Question 1, regarding whether the DePaul questionnaire accurately captures my experience of PEM, I wasn't clear on whether the criteria listed: required all of the bullet points to be included or only one or more? If it requires all of them, then it doesn't...

IMHO, the odds that the GMC would do anything is tiny. The odds are significantly higher that making overblown claims about fraud, orchestrated by a practioner who herself has had run ins with the GMC and who makes somewhat dubious claims about alternative treatments/vaccinations, would feed in...

Inheritance patterns of ME/CFS, but also other potentially related / potentially confounding conditions in close family members: EDS, mast cell disorders, thyroid problems, pernicious anaemia, other autoimmune/inflammatory conditions, plus major depressive disorder, anxiety etc etc. I think...

My personal view is that I would need an infinitely long spoon here: ME/CFS critics of things like PACE have already been portrayed as (and I believe I'm pretty much repeating an SMC quote verbatim here) 'little different to anti-vaxxers'. drmyhill.co.uk still (I just checked) contains the...

I read a chunk of this on the train home yesterday (first day back commuting in seven months following a relapse!). There's some good, some bad in there. As somebody who is in the minority that supports MEA engagement with CMRC, I hesitate to focus on the bad but the FITNET report did jump...

I wasn't aware of the study looking into prevalance in Nigeria. Bookmarking that for the next time I hear some oh-so-clever below the line commentator argue 'isn't it funny how CFS only affects middle class women in rich countries?' or some variant thereof.

I think that's a tad unfair. Had the author just said 'doubled funding', that would be a valid criticism - but here the dollar amounts are given, plus the prevalance estimates of the disease.

Doh, you're absolutely right. And I was actually reading miRNA as I was typing SNP - this will teach me to multitask... On the false positive risk: it's been a looong time since I took Statistics for Engineers so possibly a dumb question - wouldn't the false positive risk be reduced if they've...

Turns out schlepping across the country was knackering so it's taken me a little while to get around to this. Anyhow, here is the patent to which I was referring: https://www.google.co.uk/patents/WO2016023077A1?cl=en The interesting bit is from paragraph 465 onwards (it's fair to say patent...

I'm off to go and trademark + patent my all-new 'Tinkerbell therapy'. Works wonders on all terminal diseases. That is unless somebody expresses scepticism in it - in which case the patient dies.

'Spreading negativity'? Doesn't a medical doctor realise when they sound more and more like a crystal healer or homeopath? I mean, you're about one step away here from 'negative energy' or 'harmful vibrations'.

This is an excellent article. The author has taken the time to speak to both sides and the end result, IMHO, is utterly damning.

My personal view is that NCNED do some interesting work even if the SNP studies are underpowered and I’m a fan of a wide range of research groups being involved rather than an eggs in one basket approach. When I’m back home from doing the Christmas trip to the in-laws I’ll try and dig out the...