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So there was a thread I posted on in 'the other forum' about a year ago about a similar article looking at NIH data and which drew a lot of incorrect conclusions. It was one of the things that stopped me lurking there because, as a former government accountant, it was something I could...

Yep, mine was during a work trip to India (though it wasn't my first trip there and I'd been to quite a few other developing nations previously). I'm not sure this points to a specific infection though, rather that we already know that ME/CFS seems to be brought on after a general assault on...

Finally caught up with this (had a crash yesterday after three months of pretty excellent health, boo!) and I think I'd still put it in the 'worth a shot' category, even if I think the chances of success are low. Seems they're trying to do a dose-response test which does at least try and...

So is this study consistent with the Newcastle University study? (http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0186802#sec007 - Figure 3E) From my thirty second skim it seems to be pointing at least roughly in the same direction...

Good overview of the current state of play of 'spice-based research' and inflammation here: https://www.newscientist.com/article/mg23831820-500-the-truth-about-spices-is-it-time-to-ditch-the-turmeric-latte/

Ed Davey's story of a constituent being told 'all ME patients are crazy... except you' ties in exactly with an experience I had. A GP told me 'no, you're properly ill with something you got from India. Not like all those women who just won't get out of bed.'

Told Carol Monaghan her behaviour was 'unbecoming of that of an MP'. Wow. In many respects, it's good for Parliamentarians to receive the same slander that ME patients have.

(Dangerously under-informed speculative question alert) The SNP identified seems to relate to a gene involved in collagen production - could this be linked to EDS? Either showing a link between the nature of ME/CFS and EDS or, possibly more likely, people with a form of EDS being misdiagnosed...

Do we know if the Stanford data centre will link in with the NIH DMCC?

Agreed. Am pleased they are going to do formal publication as I think it’d been unclear in the past as to whether they’d focus solely on data sharing.

Apologies if this has already been posted elsewhere (I was abroad last week, am well behind on posts :)) but Newsbeat upload most of their documentaries to Youtube. Non-UK people can find it here:

From the minimal twitter scan I've done so far, there's a lot to like about this conference.

Per RTs by the MEA, it looks like the documentary that filmed at the Biobank will be called 'M.E. and Me' and is produced by Radio 1 Newsbeat. They often feature Newsbeat items on the front page of BBC News Online, so fingers crossed...

Related to HHV-6 and ME/CFS: https://solvecfs.org/hhv-6-mediated-mitochondrial-modulation-and-its-possible-association-to-mecfs/ I don't believe this project has led to a published paper as yet - anybody know if I'm wrong on that?

I think you'll need to define what you mean by environmental illness.

Maybe we could encourage one of them to sue the other for infringement of copyright? :) Although if Gupta/LP practitioners ended up in an expensive, mutually bankrupting trip to the High Court there is the very real risk I could die of a popcorn overdose.

Interesting they found Activin B was elevated, as IIRC this has been cited as a potential biomarker before - though today I'm discovering that PEM and jetlag don't exactly mix well so I'll try and hunt for that later. ETA: found it -...

I found it interesting they discussed the large placebo response, as that was what first came to mind when I looked their first chart (Figure 2, which Simon has posted above). It does appear that ME/CFS studies generate an abnormally large placebo response - my guess is that is to be expected...

This is just one of these zombie ideas that every time you think has been knocked down (because, yet again, treatment based on that idea fails to work) it just pops back up rebranded under a different name. I don't think Forward-ME should work on these topics alone: IMHO it is critical to work...

Large Donner - I think we'll have to agree to disagree. But, for what it's worth, demanding salary information, referring to charities as puppets and implying that its position is deliberately bad faith in order to keep shadowy donors sweet is far more likely to feed into a 'vexatious'...