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I think this is what they believe but they don't quite want to come out and say it. The measurement issue is interesting in that it is hard. Measuring symptoms suggests having some form of which symptoms are worse (or treat all symptoms the same but in itself that is an assumption). They are...

She couldn't since it would just be heresay in the tribunal they asked for evidence. I think they had submitted comments from PR as 'evidence' but that didn't contain the threats they claimed.

I think one paper got submitted to the BMJ as reviews were unprofessional and commented on.

I can set up a private subforum for some people to work up ideas if there is interest.

My feeling is we need to propose a process to help reach high quality research proposals and if they are generated have some money available or likely to be achieve. EPSRC have a "sandpit" process where they fund 20-30 researchers to come to 5 day workshop to interact and try to get new...

Its not just patients as a carer (with no support) I can't go to meetings in London but I would happily join via Skype.

I think it can be useful for MPs who participated to have positive stories that they are trying to help constituents and if we create positive stories for them that helps reinforce their help.

I think at the heart of there argument is that the database has a data dictionary and it is too hard for someone with no knowledge of PACE to access the relevant fields or perform any simple statistics. If this is the case I don't see how they can share information with other researchers since...

That sounds good. If there is publicity around it then that provides added momentum. Could we do something with local press for those MPs who took part. Just sending a press release to local papers?

I've not seen any press coverage of this debate which is a shame. Has anyone else seen any? Were there any press releases?

I'm not convinced they will come just by having a fund available. Two things happen; the first is that academics with a particular fashionable technique pile in (or even try to use such funding to get in with the latest fashion); the other is as time goes on the MRC will want to show it is...

I am always interested to see their reasoning to try to justify their methodology and changes. I keep feeling they may say something interesting - they just haven't yet.

Given he works for Oxford and it was written as part of his job (i.e. backing his research) I would question whether it should be private (at least I would have thought it would be subject to the FoI act).

You can do thing like pull in experts get them talking, discussing, throwing around ideas and then fund some exploration of some of those ideas. Things rarely happen by chance. In other areas research councils do more to try to start or encourage research in important areas or try to shake it up...

I think they have deleted that tweet now.

I think there was a big lobbying campaign for the Lords debate the various Lords speaking in support of PACE were clearly parroting the defense that the PACE team had given them.

The concerning funding body is the NIHR which is funding Crawley's work and funds her as a senior fellow.

I think there are two things with the MRC. The first is a governance issue since the MRC signed off on PACE and continued to support it. There head of governance gave evidence in the information tribunal to try to block the release of data. This suggests a degree of incompetence of cover up and...

I think the lack of objective measures in the outcomes section means that they will accept poor quality research such as PACE. Its critical that they understand this.

A huge thanks to @Keela Too for making sure all the tweets are captured. Here are documents capturing all of them. I've put up the rest now: Posts 1-100 https://www.s4me.info/docs/SharpeTweets1.pdf Posts 100-200 https://www.s4me.info/docs/SharpeTweets2.pdf Posts 200-300...