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According to the TMG minutes, the PACE trial sessions were to be blind reviewed by nurses from the FINE trial, whose views regarding ME/CFS patients were recorded during FINE as being very hostile at times:

Congratulations on your new house @Dechi! Good luck for a quick and easy sale of your current house, and best wishes for a new start in your new home :balloons:

Summarised by Keith Laws, Prof of Cognitive Neuropsychology, as showing that, Abstract: http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(18)30096-8/fulltext

I have yet to read the paper but at first glance this sounds like a really neat piece of research - an interesting serendipitous discovery, thoroughly followed up. https://phys.org/news/2018-03-infection-dodging-stem-cells-tactics-viral.amp Full paper: Xianfang Wu et al. Intrinsic Immunity...

This should be practiced together with Cognitive Browser Therapy to eliminate the false illness beliefs behind tab hoarding, including the idea of "brain fog", where you imagine that your brain is not functioning properly and that you have memory and comprehension problems, and fear that closing...

How about this for an all-terrain wheelchair:

New blog post by @Lou Corsius https://corsius.wordpress.com/2018/03/28/desperate-scientists

I think you're right. This just gets weirder and weirder. The quote (linked below) shows that they actually knew that they would not be improving physical activity levels, only perceptions of fatigue, but apparently that didn't matter.

Thank you for the clarification.

One thing that slightly puzzles me - the phase 2 study was double-blind and placebo-controlled, so, given the phase 3 results, presumably the conclusion is that the phase 2 study was simply too small to yield reliable results. However, phase 2 was blinded and placebo controlled, and the results...

Giant screens at protests with live video streams of the bedbound severely ill perhaps?

Can confirm it's a serious issue. I am completely bedbound, extremely physically limited, mostly unable to move except for my arms, and totally dependent on carers funded in large part by my local council. I've been told that if I can't cope at home then I have to go into a care home. My...

It sounds like classic BPS doublespeak. People said they felt better, and were even recovered according to our measure, but actually the objective evidence said otherwise.

Supposing for a moment that we take Sharpe's statement at face value, then together with his recent tweets, it damns him absolutely as a scientist: if he in fact had no vested interests, then the only reason he published was because he didn't understand the trial flaws, and as he still defends...

I feel for him that he suffered, but this does go some way to explaining the problem he has with us: he catastrophized, so he thinks everyone else is doing the same.

Vogt thinks emotion and bias and careful research are not necessarily separable. Oh wait - that's the problem the BPS crew are having :facepalm:. This tweet really suggests a lack of understanding of the scientific method.

It's certainly not about patient empowerment. Between the denial of patients' experienced reality regarding over-exertion, and sectioning, some BPS advocates clearly believe they know what's good for us better than we do.