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  1. James

    Who is Simon Wessely?

    No mention of The Legend of Camelford in this puff piece
  2. James

    Researcher at the center of an epic fraud remains an enigma to those who exposed him

    Not only journals that are failing as gatekeepers when many universities will defend researchers for the funding that accompanies them
  3. James

    CNN: Escape from the Mayo Clinic: Parents break teen out of world-famous hospital

    Read the article and considered the commonalities with Karina Hansen case. https://me-pedia.org/wiki/Karina_Hansen
  4. James

    Everything you always wanted to know about non-cytolytic enterovirus but were too afraid to ask

    https://me-pedia.org/wiki/Non-cytolytic_enterovirus
  5. James

    Submissions on Draft Scope for the NICE Guideline Review, 2018

    Agree that Malaise is a poor descriptor for a general exacerbation of any and all symptoms but the word Lassitude was once in common use describing similar physical states experienced by multiple sclerosis patients. An adjustment in the universal translator has relegated a word that describes...
  6. James

    Archive of Diseases in Childhood: Editor's Note on Lightning Process Trial (June 2018)

    Can the BMJ drag it's feet even more than PLOS ONE has over the 2012 PACE Cost-Effectiveness Analysis ?
  7. James

    Steven Lubet: Trial by Error: Professor Sharpe's intemperate remarks for whom is he speaking?

    Looking at the number of names that have reputations at risk of serious damage a quotation comes to mind that may explain the silence. "We must, indeed, all hang together or, most assuredly, we shall all hang separately." - Benjamin Franklin
  8. James

    Is it time to make room for Dr Google?

    Chimes with a Trish Greenhalgh tweet Dr - Do not mistake your 1hr google search with my 6 years at medical school Patient - Do not mistake your 1hr lecture on my condition with my 20 years of living with it
  9. James

    My conversation on twitter with cfs research and prof. Michael Sharpe

    No serious answer from the Professor or his twitter troll ally at cfs research are they just searching for evidence of abusive patients when unable to substantiate claims made at the FOI tribunal.
  10. James

    “It Has Come to My Attention…” How Institutional Complaints Procedures are Being Weaponized (article in Quillette)

    Clearing this stuff up from published research is no simple matter http://quillette.com/2016/02/15/the-unbearable-asymmetry-of-bullshit/
  11. James

    United Kingdom: Science Media Centre (including Fiona Fox)

    The SMC do not have a very good history with such correspondence unfortunately. http://www.virology.ws/2017/12/18/trial-by-error-my-questions-for-the-science-media-centre/
  12. James

    Occupy ME blog post: The NIH Pilot Program: Wait and See

    Almost as if they are waiting for certain people retiring before there can be a policy change.
  13. James

    Researchers Question “Gold Standard” Status of CBT

    When "mindfulness" was the non judgemental awareness of the present moment can the bastardised version touted be considered the same thing anymore than supportive CBT be considered the equivalent of directive CBT
  14. James

    United Kingdom service: Royal Liverpool and Broadgreen University Hospitals NHS Trust

    Using the official feedback system https://www.england.nhs.uk/participation/get-involved/how/feedback/ leaves less scope for deletion of unfavourable reports.
  15. James

    Solve ME/CFS Initiative: Discovery Forum 2017: Presentation of Dr. Elizabeth Unger

    It was also some time ago that Action for ME supported the PACE Trial but that has not stopped it's portrayal as having the support of the largest charity in the field.
  16. James

    Solve ME/CFS Initiative: Discovery Forum 2017: Presentation of Dr. Elizabeth Unger

    Eileen Holderman - In 3hour convo w Dr. Unger @CDCgov in Washington, DC, she expressed 2 me bewilderment @ advocate community outrage over Toolkit [touting GET+CBT] bc "CFIDS [now Solve (SMCI)] wrote it."
  17. James

    N-acetyl cysteine (NAC)

    Only using it once a day on empty stomach (morning) as no side effects doing this which is always a good thing when finding what the system will tolerate.
  18. James

    Anybody had an angiogram ?

    Angiogram was counted as just another routine investigation in the same way as getting an ultrasound while attempting to find an explanation for flipped T waves on ECG on Acetylcholine Provocation test. All very routine and taken from one test to another so I could return home the same day and...
  19. James

    Anybody had an angiogram ?

    Had an angiogram and the only real problem was keeping still while it was carried out as normally I need some movement that eases blood pooling / cramps / twitches jumps etc
  20. James

    I Am Stuck In The Prison That Is ME

    Better than Yahoo news article that explains CBT and GET as recommended treatments https://uk.news.yahoo.com/symptoms-diagnosis-treatment-070637371.html
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