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I am not sure if this affects us. We have chronic health problems but amputees can do wheelchair basketball and climb mountains. Of course we can become disabled because our disease is not treated and people with disabilities can develop chronic ill health because they cannot access health care...

I think that they were talking about blood flow problems with the autoantibodies which where sorted by the drug. The connection would be blood flow damage in the eye causing glaucoma in people susceptible to it but blood flow problems elsewhere causing long covid I am not very good at taking in...

I can't use chest straps so I have had a fitbit for about 4 years now and I have worked out my own patterns. It amazed me at first that when I felt I could not go on my HR was high. I can't avoid high readings as I need to do things but I try to keep them down to a few minutes then rest until it...

This is what I was afraid of. They gave cloaked the pseudoscience round with so much modern terminology and buzzwords that the central underlying problem - they have never outlined, never mind tested, a plausible mechanism for how emotions affect neurons.

This contrasts with the trials to see if vaccines caused autism. There came a point where it was said that this had been tested over and over and no evidence for it found. Rightly, the patient societies demanded that the money be spent on what actually was causing autism. Since it was a group...

Bet that hurt.

It is now established that sleep is a dynamic, highly evolutionarily conserved process that is vital to the functioning of organisms. We are at the start of a whole new window on biological processes which surveys like this are unlikely to cast much light upon. It is much more likely that...

6 - 17 days is about the length of time many people celebrate Christmas and New Year by lazing about, watching TV and eating. edit and that's how many people spend holidays by the pool I have heard (not that I've ever had one thanks to ME)

I agree with the way medical authorities want to have control over naming but the virus was originally known to be a Coronavirus which were known to be a family which was one of the causes of the common cold. The disease this new example of a coronavirus was causing was named covid19 from...

"The fitba' it has robbed them o' the wee bit sense they had"

Typically, I have stopped being able to access magazines through my Kindle Fire because of some change they have made. Books are OK. There are work rounds my husband worked out. I can still get magazines through my mobile phone by downloading the app and choosing from there. Then it is on my...

Could that have something to do with the fact that if you have been abused you are immediately classed as having a functional disease? Especially since the symptoms are often the same.

In Scotland, the numbers have soared to higher than they have ever been since the pandemic started but hospitalization is still low. It is nothing like it was last year. The proportion of hospital cases needing ICU and the number of deaths deaths are also down. Two thirds of the cases are in...

Most of the research reported in FND are confirmation trials designed to show that FND is a genuine disease. They should be looking for alternative explanations to show how robust their theory is but we a far away from science here. There has also been a flood of trials to make the diagnosis...

Neurological manifestations - I can just see the CBT people and the FND people dragging patients from each other. Now I think about it where have the FND people been in all this, curious :)

Something causes joint hypermobility and that same something probably affects other functions of the body too. Lax ligaments will cause foot pain for instance. The gut being affected doesn't seem strange but are there more seizures? FSS covers so many things it is useful for information. It...

I was talking about this thread with my husband and he said that the way they use these questionnaires is the way a magician forces a card on the member of the audience.

PEM was first used in the CDC guidelines for diagnosing CFS. Now when the CDC was asked to investigate an outbreak of an unknown disease in Incline Village at Lake Tahoe it would reasonable to assume that the symptoms experienced by the patients would have been investigated but you would be...

Before I was diagnosed and when we were young and desperate for money, I took a job as a waitress in a busy pub that had a cabaret and dancing (I lasted 2 days then collapsed for 4 weeks!) To my surprise, when I came home I could still hear the music for hours, like a radio playing in the next...

250,000 just sounded good :) and there has to be that many worldwide! I can't help but feel if there were 30 - 40 patients with ME in each practice with 15 - 20 of them moderate to severe then GPs would have a better idea of how the illness impacts people. I had more understanding that I was...