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The curse of the nice, neat table. Biological systems are messy.

How on Earth does that work? Anyway, if the right test is done first it will be cheaper, simple as that. Many diseases are not very expensive to treat once they are diagnosed especially if they are easily cured and many do not need a lot of medical input. I am sure that a lot of what is...

There is also an assumption that injecting someone with saline is a non treatment. This is not the same as eating a bit of sugar that looks like a pill.

It is very common for the reference to not match the claim or for it to be true but lying in overall effect. One Wesseley paper had a reference for a claim that all presentations of CFS are the same so there is no need to match participants. The reference was to a paper which said patients...

The more they work out how energy is produced the closer they will be to finding the cause of ME. Vice versa, studying ME may give them insight into energy production by looking at our symptoms. I get a deep, acid burning in my muscles if they are overused. Some process has gone wrong.

I am sure I heard about a firm where every Friday they had a compulsory get together where they exercised as a group. They did fun things and everyone enjoyed themselves and got to know each other. Almost 60 years ago my mother worked in a factory where everyone spent hours standing in one...

A late answer but this illustrates 2 problems with PEM. Finding standing still was more difficult than standing and moving was seen as being typical of ME. Nowadays that is called POTS or Dysautonomia or Orthostatic Hypotension but it well be that the root of the problem is something unique to...

Any part of the brain can be affected by a stroke or an infection. The resulting damage will give the same result as more usual diseases though not necessarily the whole of the complex. To assume it is social copying is ludicrous and a fine example of all those things that were stated...

My aunt died of pancreatic cancer with the common 4 months from diagnosis to death. For over three of those months she looked marvellous. Her granddaughter fixed her hair and gave her clothes to wear since she had lost so much weight. No chemo, no hair loss. It is all just prejudice born of...

Then these unproven gems - These stories always sound so good they are becoming more widely believed.

Ducktors!

A diagnosis should help you a lot. I often wonder if a lot of medically unexplained disease is caused by genetic disease thta almost reaches the cut off for diagnosis. If 4000 repeats mean you have the disease what does 3990 do?

I gave up hope and felt much better. In my case I realised I was always waiting till I was better before doing anything, always hoping the next thing wold make all the difference. When I accepted that the way I was was as good as it was going to be for the foreseeable future I was able to look...

That is the myalgia of myalgic encephalomyelitis. I feel as if there is acid in my muscles and bones constantly and it is one kind of pain. Without my painkillers I can't think for it. There are other dimensions to the pain though with the muscles feeling sore to the touch and aching with...

Charles Shepherd once said that people with ME needed some meat in their diet and that vegetarians did not do so well. (It went down very badly so it was never mentioned again.) I think creatinine was once said to be useful in ME. For myself, I don't eat much meat nowadays but there are times...

My daughter was an nurse on an orthopaedic trauma ward. Patients were usually very reluctant to take pain killers but it was explained to them that if they were not in so much pain they could move more easily which would help with healing as well as reducing the problems of immobility - so pain...

My thought processes can be very slow these days. I got caught up in a point about this thread and not the basis for it, sorry. I have never thought of the permanent drops in ability as LTSE, though it might be a good name for it. I think my confusion was because PEM was not talked about as...

Maybe the drugs they use for psychiatric disorders knacker the gut.

The nervous system and the brain are so complicated - described as being "complicated beyond words" by one neurologist - that it is ludicrous to think that these neurological deviations from normal are caused by wrong thoughts or nerve dysfunction caused by psychological trauma. Of course it is...

I think the problem is that she is working for an publicly funded organisation which has a duty to be impartial in it's statements. Also, because it comes with the authority of the SMC behind it, it is very defamatory. This is different from someone in the pub saying we are terrorists.