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Not sure that is where the problem lies.

This is the most important point about the political angle in ME/CFS: the BPS club could not have got away with it, for so long, and continue to do so, without the sustained support and protection from the rest of the power and governance structure. Which is a huge chunk of the reason those...

In what universe is this even internally consistent?

In fairness to the modern healthcare system, that probably catches the vast bulk of known and (more-or-less) understood serious problems. Not so well known and understood, on the other hand.... This. Though there is the issue of how well doctors and researchers are using existing knowledge...

This.

Which is exactly the sort of professional irresponsibility and cowardice that has allowed this shitfest to go for so long.

Long been my view that a much more careful and comprehensive (and unprejudiced) examination of the mechanical aspects of ME/CFS bodies and their functioning (or lack of it), with a particular eye on non-linearity, might find some good basic clues. It is arguably the most under-investigated...

Gets about, doesn't he.

But its absence is.

It certainly is. One the most important and under appreciated clues about ME/CFS is that we are not much more (classically) deconditioned, and that we can be more active as soon as we feel better, without having to re-condition. By all conventional understanding we should be much more...

:thumbsup:

Point taken. My interest in this is that if a prodromal phase exists and can be identified, that opens the possibility of intervening much earlier, with better management if nothing else for now, to prevent it expanding into the full blown state, or reduce the consequences if it does. At least...

If Long Covid can occur in infants, then it needs to be considered for ME/CFS. https://www.s4me.info/threads/characterizing-long-covid-symptoms-during-early-childhood-2025-gross-et-al.44351/

I suspect a similar story for me. It may be that the cognitive component of ME/CFS and its consequences are dominate during a pro-dromal phase, which would skew interpretation from the start, including not even realising there is any health problem at all. Then, if it later becomes the full...

Which might, in part at least, explain why there seems to be a low rate of onset in the first 10 years of life.

:D I think these are two observations that we need to keep an open mind on. In particular the possibility that there might be a long pro-dromal phase for many, and that some may never progress beyond that phase while still experiencing a subtle and unrecognised but still practically...

"structured water" That would be ice.

For those who don't know, that was what he had engraved on his headstone. Me too. Body-wide pain was there from day one, and the more I push myself, the sicker I get, and the worse the pain gets. Never less than a dull background roar, and usually more than that, sometimes very nasty indeed...

There will come a day when their work, particularly the quotes they have compiled from Wessely and others, will be of great value in the accountability process. It will save the rest of us a huge amount of work.

Not to mention covering their own arses.