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Good work. 1. I prefer 'we' to 'patients'. If it is being published under the banner of a patient group then it is pretty clear who 'we' is, and implicitly includes carers. Also the 'us' in the previous line establishes who we are talking about, and 'we' follows on more naturally to my ear...

This is the core reason I cannot take this stuff seriously. Its proponents are not offering any means to test construct validity, and causation, which are both required to confirm its existence. In fact they seem to deliberately avoid such testing.

What about when doctors don't understand or respect their side of the social contract? Medicine is a captive market with effectively a single supplier (i.e. a monopolistic essential service). So agreement is not really a particularly helpful framing. All one can agree to is to see or not see a...

I remain of the view that ME/CFS and a large fraction of the currently broadly defined LC are going to be the same disease.

Denmark. That would be the home of the unrepentant Per Fink. Yes? –––––––––– Danish patients, and the ME Association, should demand full transparency and evidence for these outrageous defamatory claims, and full right of reply.

@voner Could you please add some line breaks in that abstract. Large blocks of text are very difficult to read for many of us.

Patients are getting shafted three times: First by the disease, then by the medical profession, then by governments and the insurance industry and broader society. Must be those sweet sweet secondary benefits of the 'sick role' we keep getting promised.

Sounds interesting, but it is behind a paywall.

disturbances of body image Yet again, how do they know that causal attribution is correct?

Any discussion in there about the adverse consequences of inappropriate psychosocial attributions and 'treatments'?

The fundamental problem being that there is no treatment. Difficult to access any when they don't exist.

Wise choice. :thumbup:

@Snow Leopard

Clear your calendar for a week afterwards. First 3 days or so after the first Shingrix were pretty rough for me. The second shot was much easier.

Yep. It is beyond dispute now that these clowns have no interest at all in our welfare. They have no excuses left whatsoever, and could not make their real intentions and agenda any clearer. The failure and corruption is as complete and brazen as it gets. They are beyond all saving or reform...

Sorry world. But not in the slightest bit surprised. This is the reality here too, always has been. Clearly the Anglosphere is just a complete fucking disaster on this. We created the disaster, and are doing everything we can to perpetuate and exacerbate it. Don't rely on us to save you. She...

A standard of 50m gain over 6 weeks rehab is pathetic. Either this is a fundamentally different form of deconditioning being experienced by patients, which would require a fundamentally different approach. Or there is no significant deconditioning to reverse.

Good in principle, but not always in practice.

I see what you did there. :thumbup:

Indeed. It has been noted for decades, including in the formal literature IIRC, that one way to differentiate ME/CFS from depression is to ask a patient what they would do if they were suddenly cured. ME/CFS patients typically have a long list of things they would like to do. Depressive...