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  1. perchance dreamer

    Low dose hydrocortisone as a treatment for ME/CFS

    I take 4 MG of HC upon wakening, and it does help me get through the day. My cortisol was very low in the morning, and this small dose of HC along with an adrenal-supporting supplement normalizes my morning cortisol.
  2. perchance dreamer

    Jeopardy (TV show) asks a question based on SEID/CFS

    I watched this Jeopardy episode. I thought it was reductive to equate systemic exertion intolerance with chronic fatigue. I think of PEM as a symptom, not the whole enchilada.
  3. perchance dreamer

    Low-dose Naltrexone articles and experiences

    Transdermal LDN helps my sleep. My doctor likes LDN for neuroinflammation.
  4. perchance dreamer

    Bitter Gourd

    Thanks, @erin. It's a beautiful plant.
  5. perchance dreamer

    Bitter Gourd

    I'm glad you are so much better with the bitter gourd. I've never heard of it, much less seen it.
  6. perchance dreamer

    NSAIDS (Nonsteroidal Anti-Inflammatory Drugs), e.g. Ibuprofen, Aspirin

    I sure do miss Darvocette. It was taken off the market in the U.S. not that long after Europe removed it from their market. I took it in the evening and never had a problem with it. It helped for both pain and sleep. In my case, it might be just as well that it is no longer available. Tylenol...
  7. perchance dreamer

    NSAIDS (Nonsteroidal Anti-Inflammatory Drugs), e.g. Ibuprofen, Aspirin

    I take 3 Advil at night. My P.A. asked if I take them with food, and I told her I didn't since I take them shortly before bed. She read me the riot act and said I must have some food on my stomach before taking ibuprofen, even if it's only a few spoonfuls of yogurt. Otherwise, ibuprofen can...
  8. perchance dreamer

    OI is getting worse - what meds can help ?

    I have mild OI, but it's under control with lots of water, which I always add Celtic salt to, and magnesium and potassium supplements. Electromix is a really good electrolyte powder that you mix with water. It has more potassium than many other electrolyte drinks.
  9. perchance dreamer

    Gay conversion therapy

    I've always been baffled that anyone would care who anyone else loves and sleeps with. Maybe it's a way to maintain power by encouraging hate against certain groups of people. I remember years ago when Jon Stewart had a famous, religious conservative on his show. MH talked about how gays choose...
  10. perchance dreamer

    Markers of non-coeliac wheat sensitivity in patients with myalgic encephalomyelitis/chronic fatigue syndrome, 2018, Alaedini et al

    I don't have celiac, but gluten makes my joints hurt, so that's a good incentive for me to avoid it for the most part. I tolerated it just fine for much of my life, though. I've also found that I've developed a dairy intolerance in recent years although I can sometimes have certain things like...
  11. perchance dreamer

    Did the David Nutt SAFFE Xyrem drug sleep study ever publish?

    Sorry, I just realized you were talking about a UK study. My mind just went to the American study.
  12. perchance dreamer

    Did the David Nutt SAFFE Xyrem drug sleep study ever publish?

    The study I heard about was for fibro patients. I don't know what happened to it, but I think it showed very good results. My sleep doctor had been very hopeful the FDA would approve the use of Xyrem for fibro after the favorable study, but they declined, infuriating my doctor. I used to have...
  13. perchance dreamer

    Public Sessions Just Recriminalized Medical Cannabis

    I think in the U.S. that eventually money will win out over moralizing. States like Colorado and Washington have made tons of money from their legal cannabis.
  14. perchance dreamer

    Treatment suggestions for Orthostatic Intolerance (POTS or NMH)

    I've been lucky enough to control my OI without prescriptions. I drink a lot of water and add salt to every glass. I also take potassium. Mine must be a mild case compared to some others.
  15. perchance dreamer

    Low-dose Naltrexone articles and experiences

    I use the transdermal form of LDN and experience no digestive side effects.
  16. perchance dreamer

    Any experiences with chronic sinusitis?

    @TigerLilea, my ENT does the culture during an office visit. She uses some kind of little device to go into the sinuses to get mucous, I think. Anyway, it is uncomfortable momentarily, but not that bad. And I have a low pain threshold due to fibromyalgia. It's odd your ENT would tell you it had...
  17. perchance dreamer

    Any experiences with chronic sinusitis?

    When I'm having trouble, my ENT does a sinus culture to see whether I'm having a fungal infection, bacterial infection, or both. If it's bacterial, she can prescribe an antibiotic that treats that specific bug. I use medicines for sinus infections topically by putting them in my Sinugator. The...
  18. perchance dreamer

    Public The big fat lie: Britons eat 50% more than they say

    I enjoy UK detective books, and all the detectives eat a lot of bacon sandwiches. In the U.S., the most common bacon sandwich is the BLT: bacon, lettuce, and tomato. In recent years, the rude-sounding BLAT has become popular: BLT plus avocado. What do you guys put on bacon sandwiches? If I were...
  19. perchance dreamer

    Insomnia.

    I also think anyone with chronic insomnia should be checked for apnea. I'm thin and don't snore, so apnea didn't occur to me, but it showed up when I got tested. I have apnea because I have a small airway and a long palate. My ENT thinks problem sleepers should also have an ENT exam to see if...
  20. perchance dreamer

    Nasobiotex L. Sakei Probiotic Powder for sinus microbiome - anyone tried it?

    I just get mine cultured at the ENT's office. It's uncomfortable, but quick. It's odd your ENT would tell you that.
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