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  1. Arnie Pye

    Skin crawling/formication

    I've had this problem in the past but it does seem to have slowly dwindled over the years. In my case the commonest sensation I got was it felt like I had a drop of water trickling down my nose. Sometimes I would feel like I had a hair on my nose or on my eyelids or around my eyes. I still get...
  2. Arnie Pye

    Trial By Error: Letters to Fiona Godlee and Nigel Hawkes

    In some medical circles the word "female" is also a loaded term, ripe with connotations of hysteria, hypochondria and attention-seeking
  3. Arnie Pye

    EAT-Lancet study under scrutiny

    Some more links from people not happy with Eat Lancet : 20 Ways EAT Lancet's Global Diet is Wrongfully Vilifying Meat - Sustainable Dish The EAT Lancet diet is nutritionally deficient – Zoë Harcombe Joanna Blythman on Twitter: "Pesticides, fertilisers, #gm (Bayer/Monsanto, BASF...
  4. Arnie Pye

    Effects of a brief CBT and transcranial direct current stimulation on odor sensitivity: An exploratory investigation (2019)

    I used to have an excellent sense of smell. I found it very useful for making sure I didn't eat bad food, identifying the occasional fire, detecting when the dog had rolled in something stinky. So it's actually a very useful attribute to have. I'm very annoyed that my sense of smell has waned so...
  5. Arnie Pye

    Does Positive Thinking in Pregnancy Boost Children's Maths Skills?

    This is what sprung to mind when I read this :
  6. Arnie Pye

    Ethical classification of ME/CFS in the United Kingdom (2019) Diane O'Leary

    If MUS are so common it suggests that today's doctors aren't taught how to diagnose anything very much, at least if the problem is not visible. From the experience of friends and relatives over the last few years : Doctors took : 1) 1 year to diagnose ovarian cancer - by the time it was...
  7. Arnie Pye

    Ethical classification of ME/CFS in the United Kingdom (2019) Diane O'Leary

    This has already happened. I went to an A&E 70 miles from home in spring last year following a minor accident. I thought I might have broken my arm. I had never set foot in this particular hospital in my life before. When I gave my name and address the receptionist looked me up on her computer...
  8. Arnie Pye

    The Case of the Scientific Ruse

    or an alternative title I came up with was "The Day That Medicine Died". Link : https://emcrit.org/emnerd/the-case-of-the-scientific-ruse/ Article continues here : https://emcrit.org/emnerd/the-case-of-the-scientific-ruse/
  9. Arnie Pye

    Use of antidepressants for/with ME/CFS?

    Snap! I did get a reduction in pain levels with the TCAs. But I also got tachycardia. And the tachycardia was intolerable, so I had to give the TCAs up. The amitriptyline gave me a heart rate of around 150 bpm, the nortriptyline gave me a heart rate of 135 bpm. Neither was tolerable for very...
  10. Arnie Pye

    Post-bacterial infection chronic fatigue syndrome is not a latent infection. Melenotte et al. (2019).

    Link to the above paper : https://www.sciencedirect.com/science/article/pii/S0399077X18307923
  11. Arnie Pye

    Does your ME cause sleep inversion?

    I was aware of the problem with diphenhydramine. I had really severe sleeping problems a few years ago and took the maximum dose of the stuff every night for several months. Eventually I got all sorts of new health problems developing that I traced to the diphenhydramine and I stopped taking...
  12. Arnie Pye

    Her Face Droops Without Explanation. Can You Tell Us Why?

    [My bold] It is my understanding that many doctors in the UK would disagree with the idea that a functional disorder is not psychiatric. Many of them blame the patient's mental health and tell them they are probably stressed and they should lose some weight, do some exercise, and get plenty of...
  13. Arnie Pye

    Does your ME cause sleep inversion?

    My emphasis. I've tried sleeping on sleeper trains between Scotland and England, and failed miserably. This was many years ago, I don't know if the service still exists. I've also struggled to sleep on cruise ships. The idea of sleeping or trying to sleep while constantly moving sounds like my...
  14. Arnie Pye

    Public Educating patients or blaming them? Public education campaigns on antibiotic resistance

    An anecdote : I've been told by someone that many patients don't understand how antibiotic resistance occurs. At the time that people were being urged to "complete the course" when they were prescribed antibiotics quite a few patients stopped taking them early because they were worried that by...
  15. Arnie Pye

    Trial By Error: Some Thoughts About an Upcoming Article

    Off-topic, but I got quite excited when I read this (I'm very deaf) and went looking for them. Unfortunately I got the message that was approximately... "You're in the UK, get lost, we don't sell to the likes of you".
  16. Arnie Pye

    Women Are More Likely Than Men to Die From a Heart Attack

    There might be evidence of a problem when the Office of National Statistics puts together the causes of death statistics. But then they will probably just interpret this as people (mainly women) ignoring all the "good" advice from the government i.e. lower cholesterol, avoid "artery-clogging...
  17. Arnie Pye

    Trial By Error: Some Thoughts About an Upcoming Article

    @Trish posted a link in this post : https://www.s4me.info/threads/trial-by-error-some-thoughts-about-an-upcoming-article.7944/page-5#post-140485 to a description by Keith himself of how Holgate got involved ...
  18. Arnie Pye

    Trial By Error: Some Thoughts About an Upcoming Article

    If I was a betting person I would suggest that, wherever this article about @dave30th appears, readers won't be allowed to leave comments. I would also suggest that Dr Tuller is unlikely to be given the right of reply. I really hope I'm wrong though.
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