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re PACE press releases: Loads of them are available. My bookmarks for them are all a mess though - I should be more organised. eg: http://www.ox.ac.uk/news/2015-10-28-treatments-offer-hope-chronic-fatigue-syndrome-cfsme-0...

I hate to defend the Royal Family, but some people have taken this quote out of context:

I had been trying to make a note of the silliest or most misleading tweets from Sharpe... but there are now too many. I've lost interest. [edit: well, I'll still read through them all every day in a compulsive manner, and use doing so to put off doing anything useful... but I've lost quite a bit...

I meant it's best to be cautious on the whole 'psychological vs bioological' topic, and therefore that just making a reference to the IOM report can be a way of addressing the issue without needing to make any assertions of ones own. Edited my above post now to make clearer.

I was wondering that. Also - have they moved from claiming that it was just that 1 year was too little time to show an improvement in employment outcomes? They've still not release their employment outcomes for 2.5 year follow-up.

I've only been going off the discussion here, so sorry if I'm missing some important context, but I think that this sentence is likely to be unhelpful, with or without 'primarily' removed. “Recognize that ME is primarily biological, not psychological, in line with a growing international...

Probably won't know until the day.

Particularly when we don't have a good understanding of the biological processes which lead to people suffering from ME/CFS, and the diagnosis is based upon somewhat arbitrary criteria, I think it would be difficult to have people use the label of 'ME/CFS' (or any of the alternatives) only to...

I think that I'd also avoid saying MS or cancer do not have a psychological aspect, as to me those labels apply to the state of having the condition as well as just the biological processes of the disease. It also wouldn't surprise me if psychological aspects played some role in how those with...

The state of having a broken leg will have psychological aspects to it. That's certainly not to say that psychological care should be routinely provided to everyone with a broken leg though!

Just point out the problems with the psychological research and arguments that are used to make exaggerated claims about the importance of the psychological aspects of CFS. I see no reason to take a position at all, particularly when the evidence is so weak. Anyone who tries to argue that...

The whole 'psych vs bio' thing is just a language minefield, and worth trying to just side-step imo. It so often causes us trouble, and so rarely (ever?) seems to benefit us.

I certainly think that PACE led to more confident assertions to patients about the efficacy of CBT and GET, and their ability to get CFS sufferers 'back to normal'. Also, I think that the suffering and hardship inflicted upon patients who had the temerity to point out the problems with PACE, and...

Sounds like we're not going to get info on the talk, but I thought I'd ask if you heard anything just in case.

That only just occurred to you?! We clearly don't go on about it enough then!

Wonder if they were paid by the DWP for this, from 2016:

A lot of my concerns about this stems from Action for ME still not seeming to realise that more attention on ME can be a bad thing if it's the wrong sort of attention. Until we get PACE universally recognised as debunked, might having ME classed as a neglected disease risk making things worse...

Also, I expect none of us are well informed enough to really understand all the details of the problems around ME/CFS, no matter how smart we may be. It's a real mess, so we're all going to have to try to help each other out to make progress as effectively as possible. There could be a danger...

Any other news about Wyller or Larun?

Thanks John. You're digging up so much stuff to go through!