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Had forgotten about this - when Coyne posted this blogpost about PACE on his then PLOS-blog in 2015, his blog got shut down after complaints. Will be very interesting to see what happens to Bastins blog - or are the times truly changing...?

If 'consumer' is the term used within Cochrane, then I'm glad she stuck with it - because this in many ways are mostly aimed at people within Cochrane, isn't it? They will likely all read it? The old review group, the new review group, Larun et al, Tovey - and clearly some of the mentioned...

No idea if it would work in english, but the norwegian term beeing used translates to 'activity adapting'. I don't think I ever heard confusion about what it means - adapting your activity to your current abilities. The term is usually used in combination with the term 'energy conservation' as...

This bit - wasn't there something about it also beeing the biggest trial in psychology...? With the added prestige with that, but don't know it's correct or a source?

Yes, in both ICC and CC, that's the 'entry level' required to set an ME-diagnosis. Mild is not 'a mild illness', but from the grading - mild - moderate - severe. She emphasises that even what is called 'mild ME' is indeed very severe.

A patient did already, there was a news article with a patient and Saugstad (a medical doctor, advisorer for the ME association) - Kaliope posted it I think? But you're right, it can be hard to step foreward here, maybe more so for long time patients. We've had more then a decade of Live...

Wow. That's some brave, outspoken blogpost! Putting here feet right into the middle of the controvers and not only siding with patients, but critizing researchers, reviewers and even the basic tools that PACE resides on. And more. Saw some comment a while ago, that she was reading up on the...

I'm so mad at this man :mad: There are so many patients stories about detoriation after a stay there - but no sign of that in his paper. The patients that had to leave partway throug either - or the ones that could hardly manage some of the classes, and laid exhausted on the floor of their...

I've had some luck with - stress can trigger a heart attack, but you don't start treatment with lifestyle management and reducing stress. You'll have to treat the body and the heart first. But here the stress-theory of 'sustained arousal' is the dominant one (Wyller).

It's a very nice letter, and I hope it makes an impact, beeing a student newspaper it might. But for the 'true belivers' of ME=psycosomatic, all those studies is just proof how powerfull the mind is in inducing actual symptoms and change in the body :-/

:jawdrop:

Based on this reviw: Comparative evaluation of group-based mindfulness-based stress reduction and cognitive behavioural therapy for the treatment and management of chronic pain: A systematic review and network meta-analysis https://ebmh.bmj.com/content/22/1/26

It's strange, as everyone following the 'news in scandinavia' thread probably have noticed, there is a rather strong culture for public debate over here.

While we wait, a comment by Larun about the individual patient data review - on an article by Helmfrid og Edsberg, in 2017. (google english - swedish) Now gone - withdrawn before publishment by the editorial group: "This protocol has been withdrawn and it is no longer being progressed to a...

It seems to be their own idea - here's the rationale: But - now I noticed this, it doesn't make sense at all...? Both groups actually had the same treatment - only in opposite order.....? Do I need more coffee....? :bored:

From the promotion at 'Helse Fonna' (the health region) - posted earlier in the thread as well. (google english - nynorsk (='new norwegian', written version of norwegian based on dialects) ) The study Stubhaug says this study is based on...

Interesting how there is nearly a total overlap between the neurasthenia and oxford criteria.

Ah, so I was wrong, the CCBT is sort of a cbt/get-mix? and the placebo was for the mirtazapine. This is kind of confusing, isn't it? So he is aware of the need to blind the medication to get a more reliable result, but yet there is only subjective measures for the therapy arm. Edit: missed...

Thank you! Haven't got around to make use of sci-hub yet :) So, it's patients diagnsed by f48 - neurasthenia, that might explain why this paper isn't mentioned much.

Have not read it, can't access it? Do wonder what they used as 'placebo therapy'. "comprehensive cognitive-behavioural treatment (CCBT)" must in reality be the homemade mix of talking (to), walking, drawing, mindfullness described in the 4 day treatment? Also, at the time I was not...