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  1. inox

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    Agree, Stubhaugs 'study' (and I use quotes because it's lack of resemblance with science) to me reads as an exercise in how to maximise the biasing of research participants, more than any placebo respons. It's like, take any good researche practice for minimising bias - then do the exact opposite.
  2. inox

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    It's even worse, in Stubhaug's study. Abouth half of the 'treatment effect' happened before any treatment at all - in the interval between the 'motivational meeting' for assesment and start of treatment.
  3. inox

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    Also, all these 'get up and go theraphies' is exactly what every patient have tried to do themselves, just getting more of the same - with added blaming - isn't really helpful, or even inovative
  4. inox

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    Somehow, the new, overhauled website made the 'study' feel even more like an advertisment masquarading as science now. Yup. The same trick Landmark/LP used, at least in it's early days. They do seem to learn a lot from each other :confused: There used to be an application process to get to...
  5. inox

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    Headline is horrible misleading :-/ Seems to be based on the forskning.no article, with Sommerfelt and Tronstad? Not quite the same, as I remember it, more Stubhaug and less Sommerfelt. But this about questionnaires is new...?
  6. inox

    Trial By Error: Who Has the School Study Documents?

    So that's the way to do it, just claim any research project is a 'pilot clinical service'.
  7. inox

    Literature search on PEM from The Norwegian Institute of Public Health by Lillebeth Larun et al

    It might seem pointless compiling a list like this. What use this list will have, I have no idea. Perhaps the ME association have a something in mind, don't know. The institute of public health must have some demand for this service, since they are offering it. But reading the...
  8. inox

    Literature search on PEM from The Norwegian Institute of Public Health by Lillebeth Larun et al

    I very much agree a list like this isn't of much value in it's current form, but that's not really Laruns fault. This is an actual service the Norwegian Institute of Public Health offers, systematic literature searches and just compiling a list of search results.
  9. inox

    Literature search on PEM from The Norwegian Institute of Public Health by Lillebeth Larun et al

    Yes, exactly - "a literature search" :) But that's the point :) this is a service they offer, just doing the legwork of doing this systematic searching of all medical/research databases etc, and compiling a list of all studies of possible interest. it's then handed over to a...
  10. inox

    Predictors of chronic fatigue in adolescents six months after acute Epstein-Barr virus infection: a prospective cohort study,2018,Pedersen et al

    The main authour, Maria Pedersen, would be the same Maria Pedersen from this thread, defending her thesis today - february 28. "defending the thesis Chronic “Chronic Fatigue and Chronic Fatigue Syndrome Following acute Epstein-Barr Virus Infection in Adolescents”"...
  11. inox

    Literature search on PEM from The Norwegian Institute of Public Health by Lillebeth Larun et al

    Not that I'm in the habit of defending Larung - but this is not a review. And it's not presented as a review. Reviewing the quality of the studies is not the point of a litterature search. It's just gathering a list of all studies they could find that included the search words 'PEM', 'PENE'...
  12. inox

    Literature search on PEM from The Norwegian Institute of Public Health by Lillebeth Larun et al

    It's just a litterature search, that's how they are done :) at least the ones this Institute does, regardless of topic at hand. There is no quality control, discussion, recommandation or anything. Just a list of studies/papers/articles that may or may not be of interest - and it's presented as...
  13. inox

    Literature search on PEM from The Norwegian Institute of Public Health by Lillebeth Larun et al

    I would assume she has become the go-to person for anything ME within the Norwegian Institute of Public Health :-/ Who got the assignment would have been an internal decision at the Insitute, and unfortunatly also the then functioning director at the Institute made statements in support of Larun...
  14. inox

    Literature search on PEM from The Norwegian Institute of Public Health by Lillebeth Larun et al

    Ingvild Kirkehei is a research librarian, and the project manager for this.
  15. inox

    2019 blog: Co-producing a systematic review with patients [Patient wanted more positive emphasis on psychosocial management for post cancer fatigue]

    Huh. Wonder if Larun is open to this approach ;) Note that Hilde Tinderholt Myrhaug is employed at the same place as Larun and Brurberg - the Norwegian Institute of public health, and both are Cochrane review authors. Some background for why this review (probably) happened. There's been some...
  16. inox

    Increased risk of chronic fatigue syndrome in patients with inflammatory bowel disease: a population-based retrospective cohort study (2019) Tsai et a

    Whether or not these patients have ME or chronic fatigue - this bit was still interessting: "Further analysis indicated a significantly higher risk of CFS in patients who were male."
  17. inox

    Intimidation of PACE critics or critics of other Psychosocial research

    Talk about sending mixed messages :noteworthy: no worries, a nice dose of cbt can help with that..? :angelic: :rofl:
  18. inox

    Intimidation of PACE critics or critics of other Psychosocial research

    he invited me to meet him for a coffee to discuss his stance further… Wonder if there is some sort of hiarchy? Coffe vs beer vs lunch? :P
  19. inox

    Intimidation of PACE critics or critics of other Psychosocial research

    A trip down the memory lane - via @Marit @memhj No need to google translate this one, it's mainly links and quotes, and they are kept in english. 'Journalist Sonia Poulton receives phone call and long e-mail from pofessor Simon Wessely after article', 2012.
  20. inox

    Concerns about Cochrane

    Mad in America - Institutional Corruption in the Cochrane Collaboration, by Peter Gøtzsche. Not sure what part to quote - it's about what happened around the expelling and the board meeting. Also about launching his new initiative "Instititute for Scientific Freedom".
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