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Ah, ok. Well Rosmalen already gets Long Covid funding through the Lifelines project.

Did they really apply for funding? Specially Knoop?

@siobhanfirestone Do you know more details about patient history / anamnesis and clinical picture & Symptoms? Typical ME CFS (strict guidelines e.g. with PEM)? How long sick ? Measurements e.g. antibodies, etc? Why was decided on Car-T ? Which clinic was giving access to Car-T based on what...

I agree with all the criticism. If I would be a RA patient I would be very disappointed with this trial. Unfortunately in the world of ME CFS patients, this is as good as it gets. Maybe there is 1, maybe 2 double blind controlled trials taking place for ME CFS at this moment. So, although...

Has anyone seen Prusty Presentation? I found it very interesting. Maybe it is A repetition of Findings and Hypothesis he has mentioned before, but for me, it was very clarifying. Specifically this slide, which IF it is a valid model of disease mechanism, is very good. – It’s the second part of...

Quick search, but Can t find the YouTube link. From this conference. https://mecfs-research.org/mecfs-conference2023/ B and Plasma Cell Targeting in ME/CFS Øystein Fluge

One case study from their May 2023 presentation.

Indeed. Every patient has to be well informed on possible risks. Therefore - by lack of doctors that are treating us - we should be able to asses and check the research data ourselves. I did a quick search and found various studies. I have not found your 40%, do you possibly have a link? - to...

I agree completely. One should understand that a lot of patients are already progressively severely (and violently) ill, and don’t have any choices. If we would have a plethora of options similar to diseases like Rheuma or M.S. there would be a choice. But for us it is basically choose CGT/GET...

Very Similar study Preprint With Scheibenbogen involved. 10 patients with 7 responders What is mostly (temporarily) help earlier stage ME CFS? Or also benefit for late stage, more severe ME CFS? there is the anecdotal improvement of the (very) severe German patient Faraz Fallahi - you can...

Question from Robert Phair on PhRising An ACOD1 genomics question https://forums.phoenixrising.me/threads/an-acod1-genomics-question.90574/

At quick glance I can only find Publications on Amyloid deposition in skeletal muscle in relation to Amyloidosis https://www.sciencedirect.com/science/article/abs/pii/S0046817798900612 https://jnnp.bmj.com/content/jnnp/60/6/655.full.pdf and many more