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Thank you @Dolphin , so yet another MRC funding coming under CFS/ME which is actually chronic fatigue to add to the oxford fatigue studies and the sjogrens one. I don’t class that as biomedical research, or ME RESEARCH, the Crawley one, so it’s good to know that for figures when I write my...

If that application figure includes the 2011 ring-fenced funding granted ones, then that really Is low funding achievement because it would mean just two outside those successful for that funding call have been funded out of about 20-25 in the past ten years.

Its a very low sum anyway. I think that most Of the £2.5m MRC funding quoted is biomedical research though I would love to hear if anyone knows of the seventh beneficiary? And it doesn’t matter if the NIHR cAn point to the odd hundred thousand every year, although i think that is Much more...

https://mrc.ukri.org/news/blog/encouraging-new-ideas-for-cfsme-research/ This is old news and some might think it’s dredging up the past but I hadn’t seen this at the time although I’d read the official CMRC report. However given that Holgate has been given hero, leader, chief negotiator status...

Yes I’ve no issue with FND as a category for that type of issue. I do think the fnd people are reductionist of CFS when they decide we belong in that group too and I worry when CFS is put under FND and right back into a BPS framework again .I think that Simon Wessely couldn’t bear such disorders...

It seems wessely was worried an FND group was lacking PS factors so ran in to rescue the situation. I couldn’t see they found anything significant though? Being female was associated, another wow finding

Also good that they’re still raising large funds. I have hopes they will be the ones to break into this and they deserve to be

Great news about Chris Armstrong

The word activist when used about patients or our advocates is afaic a derogatory loaded term. There’s a big movement to get improvement for mental health care and I don’t think those campaingners and lobbyists are ever described as activists. It’s really mainly used for fringe and contested...

Stephen brine’s response is unacceptable, as said above what they offered FM was more and atLeast a reasonable response. Hundreds of patients with ME didn’t write to their MPs complaining about what’s being done after calling for a HoC debate only for essentially defence of status quo to be...

Is it looking good organisation? I read the blog which they seem to have instead of a website and it lost me when they said they would be advocating to WHO "over the next few years " or something similar. They also had a definition of advocacy that sounded like how AFME work here, just working...

I note it’s mri scans used In the first study. Has this research been done in ME and shown anything anyone? I remember hearing about impaired blood barrier but i don’t know if that was just hypothesis or tested. Surely if we had scans come back like this it would be validating ?

Second study

Chemicals 'repair damaged neurons in mice' http://www.bbc.co.uk/news/science-environment-47234787 2 studies on mice First is on leaky brain barrier and inflammation

He’s probably just repeating what he heard at kings. The bps people usually assert 1/3 can recover but that would be Fukuda oxford NICE CFS with perhaps unusual definitions of recovery. People who get better do sometimes unfortunately seem to think everyone else could if they were also as...

Exactiy, that’s what I find so frustrating. The way this is talked about in this debate which should not even be a debate, is false because the actual applicability of PACE to the general population which includes severe, entrenched, people with ME who feel exercise couldn’t help, people with...

I saw that. I think he wanted her to approach him rather than it look like he was interfering or trying to influence her, yet he was so clumsy at it

Yes indeed when bmj usually allow Nigel Hawkes to cover CFS issues in a very hostile way

I don’t know if this has been reported but Michael sharpe is now asking the author to contact him to discuss her paper and his concerns.

Utter bollocks isn’t it. Is that Simon Aylwin in any position of influence or care because he doesn’t get it at all. What he’s describing is CF but with ME it’s nothing to do with the activity being unaccustomed and that sounds like wessely speak “ofcourse you might get some “unpleasant...