Search results

Can you think of examples where this has happened beyond Crawley. I think there are two points here with the first being around the ethical examination and whether extending a trial is used as a mechanism to avoid detailed scrutiny. The other point is that in designing the full trial...

It does look like the ethics committee has extended it from a feasibility study to a full trial. Which seems to me very dodgy. From the Smile trial we learned that this approval goes through a sub committee rather than the full committee and hence she is avoiding a full ethical examination of...

She doesn't just dismiss us she propagates and promotes that myth. But here comments should reflect badly on her reputation as a proper scientist in that she is supporting outcome switching. I'm not impressed with her from the little I've read its not well reasoned arguments but tends to be...

In terms of the GDG I thought this was interesting

The recovery paper was a big own goal for them because it is indefensible and some trivial level of thought would have told them that. There statements around it suggested they knew this as well. I can see with the main paper they could claim they just don't understand/agree with the...

I can't see a requirement for a 20 point improvement in the recovery criteria. There is a requirement to meet the Oxford criteria but even this has been modified so for some patients the are deemed not to meet the oxford criteria if they don't meet any of the trial entry criteria. So if either...

They were collected from various social media sources so there is no way to verify them. I suspect the original purpose was to counter claims from QMUL that if a patient was identified they would be attacked and killed by a mob of angry patients. Since no one we attacked on social media

If someone blocks you then if you log out of twitter you can see their tweets or use incognito mode in the browser.

They have promised this for a while but they want to review any work done prior to sharing data so its not valid sharing. Also we have no documented evidence that any independent ethics committee object to data sharing.

They don't measure the underlying condition but the effects of the condition on activity. (Not sure about the CPET one but more validation is probably needed).

They didn't publish it it was a peer review for the paper on PACE that was submitted.

I think this is what they believe but they don't quite want to come out and say it. The measurement issue is interesting in that it is hard. Measuring symptoms suggests having some form of which symptoms are worse (or treat all symptoms the same but in itself that is an assumption). They are...

She couldn't since it would just be heresay in the tribunal they asked for evidence. I think they had submitted comments from PR as 'evidence' but that didn't contain the threats they claimed.

I think one paper got submitted to the BMJ as reviews were unprofessional and commented on.

I can set up a private subforum for some people to work up ideas if there is interest.

My feeling is we need to propose a process to help reach high quality research proposals and if they are generated have some money available or likely to be achieve. EPSRC have a "sandpit" process where they fund 20-30 researchers to come to 5 day workshop to interact and try to get new...

Its not just patients as a carer (with no support) I can't go to meetings in London but I would happily join via Skype.

I think it can be useful for MPs who participated to have positive stories that they are trying to help constituents and if we create positive stories for them that helps reinforce their help.

I think at the heart of there argument is that the database has a data dictionary and it is too hard for someone with no knowledge of PACE to access the relevant fields or perform any simple statistics. If this is the case I don't see how they can share information with other researchers since...

That sounds good. If there is publicity around it then that provides added momentum. Could we do something with local press for those MPs who took part. Just sending a press release to local papers?