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Fear of exercise: Tackling fears about exercise is important for ME treatment, analysis indicates https://www.bmj.com/content/350/bmj.h227/rapid-responses "We would like to clarify that we did not say that fear avoidance was the cause of CFS [3,4]. We did not state that the illness was...

The absurdity of it all has been highlighted time and again: "A teenager whose arms and legs were amputated after he nearly died from meningitis was ordered to attend a meeting in person or risk losing his disability benefits, his parents have said." "“It isn’t like he’s going to get better. He...

shame Carol can't wear a little earpiece ( like in spy films ) so you can prompt her from afar.

@Esther12 thanks for the transcript. I never really twigged before that Simon Wesselys missus was also 'in on it'. One of the key things was for me Tylee saying: " Tylee: "Right, now on that idea about alienation, this is something that we often find in primary care you know we're trying to...

Am trying to find an original/unedited version of this interview with Chalder (post PACE?) which is putting CFS in with MUS.

Re: Sharpe's comments about false illness beliefs Just rewatched the video of Chalder (3rd in my post here : https://www.s4me.info/threads/a-general-thread-on-the-pace-trial.807/page-9#post-74165 ) I might have a go at doing a transcript of what she says because it spells out the PACE model (I...

Trudie Chalder was clearly in demand after PACE: BABCP President Elect: 2011-2012 President: 2012-2014 http://www.babcp.com/About/Past-Executive-Officers-and-Committee.aspx

just listening now; talks about 'post exertional fatigue' not PEM; interviewer keeps bringing it back to mental health:unsure:, emotional wellbeing etc again the debate re physical/mental illness...... agree with @Andy on the CBT issue Very different from her interview with Gary Burgess...

I contacted them about it 3 years ago and they said they were looking to re-do it.......hmmm. Also (as I've posted elsewhere) it's interesting that on the main NHS choices site the MEA is the only charity linked to : "ME Association is a charity that provides information, support and practical...

A similar thing was promised by Damian Green for ESA for chronic conditions, which later transpired would be on a case by case basis but I have not seen any evidence that it was in fact put into practice.

@dave30th you have been awarded a BOTtoMS (Blocked on twitter by Michael Sharpe) :emoji_medal:

for people on twitter there is a google app (for chrome) 'twitter archiver' or for mozilla 'twitter save' addon;

hope someone is saving all these tweets

anyone mention Camelford yet? Maybe this could be Wessely's Law. http://citeseerx.ist.psu.edu/viewdoc/download?doi=10.1.1.738.9135&rep=rep1&type=pdf https://www.theguardian.com/society/2012/mar/14/camelford-water-poisoning-inquest

or you could pm him from here as he is a member @Mike Godwin

@dave30th I have not gone into this in any great detail but was looking on the WHO ICTRP http://www.who.int/ictrp/en/ Under trial registration orgs there is: UK Research Integrity Office, Code of Practice for Research (3.7.13)...

"the needs of people who have M.E. and are able, with the right support, to stay in or return to employment." the problem with this sentence is it is the DWP who decide who is/isn't able

have set up a thread here: https://www.s4me.info/threads/experiences-with-insurance-companies.4634/